@binkybunny

You received some great advice already. I just wanted to jump in and say how great it is that you are supporting your wife. My spouse has been extremely supportive, and it's really helped me through the diagnosis stage and the phlebotomies. So know that you play a vital role in helping her navigate all of this.

I was diagnosed with PV November 2024 and just requested a new hema/onc today. I just can't deal with my nonchalant and condescending hematologist anymore. No, this is not a life-threatening cancer right now ( I'm < 60 yo w no history of blood clots), but it is life-altering.
Try to find an MPN specialist in your area. Here are some useful questions, from the Voices of MPN website, to ask your physician:
Voices Blog
Finding an MPN Specialist
Voices of Mpn logo
Author: Voices of MPN

WHAT QUESTIONS CAN HELP ME CHOOSE AN MPN SPECIALIST?
It’s important to take an active role in your own care by doing your research and asking questions that can help you make informed decisions about your care, including who is going to help you manage it.

The following questions can be used to guide your discussions while consulting with various Healthcare Professionals:

How much experience/training do you have caring for patients with MPNs
How many MPN patients are you currently managing?
Are you board-certified and licensed?
Note: A “board-certified” hematologist-oncologist is licensed to practice medicine, has additional education and training in hematology-oncology, and has passed specialty medical board examinations
Do you belong to any MPN professional societies?
Have you participated in any MPN clinical trials?
What MPN and/or hematology/oncology conferences have you attended?
Are you willing to collaborate/consult with my other Healthcare Professionals as part of my ongoing care?
Are there additional support resources available to help me with questions and quality-of-life concerns (eg, nurses, case managers, social workers)?
What is the average wait time for scheduling appointments?
What hospitals or cancer centers are you affiliated with?
Do you have other office locations?
Do you offer telehealth (or virtual) appointments?
How knowledgeable is your staff about MPNs?
What is the best way to contact you?
How quickly will my phone calls be returned?
What should I do if I need to contact you at night, on weekends, or on holidays?
What kind of questions should I direct to you instead of my primary Healthcare Professionals

I hope your wife is recovering well from her biopsy.