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Profile picture for rachel5239 @rachel5239

@hello1234. They have never talked to me about changing meds. Right now I am on 5 mg of prednisone, Tacrolimus .5mg 2x a day and 500 mg of cellcept 2x a day. By the way, how are your kidneys? I have been at stage 3 for several years. Lowering my dose of Tacrolimus helped.

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Replies to "@hello1234. They have never talked to me about changing meds. Right now I am on 5..."

@rachel5239 thanks so much for letting me know about your meds. I am taking 500mg bid Cellcept and 2.5mg Envarsus XR (Tacrolimis). I am a five year kidney transplant and my new kidney is doing well .
The skin cancers I am growing on my scalp really concern me. It feels like I get a scalp biopsy every other week. Luckily, I love my Dermatology Office.

@rachel5239 & @hello12345
I was on Cellcept for almost 18 years first 500mg. 2x daily, along with 5mg. Prednisone and 1mg. Sirolimus once a day (after alternating between 1mg. & 2mg. every other day). The long term use of Cellcept eventually was causing G.I. issues and even an embarrassing rectal prolapse which was surgically repaired 2 years ago. So I was switched to Mycofenylate 250mg. 2x daily. (spelling?) Still having issues and team considering increasing Prednisone and stopping the Mycophenylate. Frustrating that now, this many years post transplant, still having meds juggled around. I don't know if I mentioned it but my husband was my donor as my blood type is AB+ which is rare and a universal receptor so my O+ husband got out of giving me jewely or flowers as an anniversary gift that year and instead gave me a kidney.