Is there anyone out there who is dealing with Iron Overload not caused by Hemochromatosis? Mine was caused by a reckless doctor at The Cancer Center of North Dakota when I went there for treatment for chronic anemia. I received 13 IV iron infusions over a 9 month period. He never checked my ferritin until a month or so after the last infusion. My serum ferritin level was 2149ng/ml. I can't do Chelation therapy because I lost a kidney that atrophied a couple of months before I received my last infusion. It's suspected now that it atrophied due to ferritin overloading the kidney. My Urologist could find no medical explanation for the kidney to fail, but we weren't looking at ferritin overload back in 10/2023 when the kidney was removed. In june my Pancreas atrophied. Again, no medical reason was found and I'm trying to get my Hematologist to order a biopsy to check for ferritin as a cause. I'm also looking to see if Sanford Medical Center can check the kidney that was removed, they don't throw organs away, to see if there is ferritin in it. I'll be going to Mayo Clinic in Rochester, Mn on 10/3/2025, to see if they can do something to lower the ferritin before it gets to my heart. I have a systemic overload. Ferritin has been found during biopsies of my bone marrow, lymph nodes in my lungs and a severe amount in my liver. If anyone has dealt with extreme iron overload or if you had a loved one pass away from multiple organ failure, secondary to very high Serum Ferritin levels, please contact me. If Mayo can't help me, my heart is probably next and I won't survive that. Thank you.
@guyjeff123