Living with colorectal cancer - Meet others & come say hi

Thanks for your reply. I was diagnosed on March 2019. I undewent chemotherapy with golfox and bevazucimab followed by cytoreduction surgery. My surgeon didn't do hipec as he said in colon cancer with pci of 21 hipec is not recommended. Now I am on adjuvant chemotherapy. I want to know how many cycles are recommended postoperative by Mayo Clinic and how u follow up patients afterwards

@shiwlika Welcome to connect. I am colon cancer survivor. It is very scary at first when you are diagnosed. However, we are lucky to be born at a time where they have made tremendous progress with treating colon cancers.
My colon cancer surgery was done at Mayo. They check my CEA levels every six months. I believe they do that for 5 yrs post op.
I had a colonoscopy at 6 months post op. Then at 1 year post op. Now I am on a schedule of every 3 years for a colonoscopy.
Hope that helps? I did not have adjuvant chemotherapy so I cannot help answer that. .
I wish you the best
Jackie

Thanks jackie for reply. What was your stage when you were diagnosed? Do they do any scans for follow up

Anybody here using fermented wheat germ exyract

Hello. My 40 year old son was recently diagnosed with T3 sigmoid colorectal cancer. The surgeon said he recommended removing it right away followed by chemo. My son and his wife have read about research into neoadjuvant chemo for 6 weeks before surgery as a way of minimizing recurrence. Any one have any info about that or had a doctor suggest it?
Thank you all.
Wibly

Hi @wibly, Do you have a link to the research about neoadjuvant chemo helping to minimize recurrence? I'd like to read that. Neoadjuvant therapy can help reduce the tumor and make it easier to get clear surgical margins.

Hi i also have sigmoid colon cancer with peritoneal spread. I had chemo with folfox plus target followed by surgery and now am on postop chemo. I think this is what universally followed regimen

I think I’m a member of this group Colorectal Cancer, though not sure. I have unusual symptoms that are ‘concerning for malignancy, in my colon. My 2nd colonoscopy in a year. With precancerous polyp on my appendix plus other negative catscan sign, waiting now for lab report from 11/24/19 colonoscopy.

Hi @bonnieb81, yes, you are a member of this group. I was re-reading some of your background in this discussion you started:
- High Risk for Colon Cancer due to Pre-cancerous adenoma, age, or both https://connect.mayoclinic.org/discussion/high-risk-for-colon-cancer-due-to-pre-cancerous-adenoma-age-or-both/

You've been dealing with this suspicion and the unknown for almost a year now. That must be worrisome. Waiting is tough! How are you holding up?

I thought I was a member.. but maybe not. I’ve been operated on colon-rectally several times... having precancerous polyps.. so 11/2018 my surgeon showed by lab results.. a precancerous polyp in my appendix.. plus one other polyp.. neither one removed during colonoscopy due to the ‘kind’ and location..thru the yr 2019 I’ve had abdominable pain and elimination issues.. incontinance too.. finally I spoke to PA.. and she said Dr. Said to tell me polyps were removed.. by lab report I read.. they were not’.. so still ill at ease, I made appt w/surgeon, he said he can snip that polyp and appendix right out! “ but.. let’s get catscan .. okay I did.. when no word as to results of catscan I got the report myself, it stated “ thickening in illeocecal valve and cecum... concerning a malignancy... so once again contacted surgeon (who did all my colonoscopies and surgeries for colon(hemmoroidectomies etc) he said I should have another colonoscopy, so Dec. 24,2019 I did. He removed a polyp and I now wait to find out what biopsy says... but he did say I would have to have appendix out (with precancerous small polyp inside appendix...) I’m waiting! 82 this month to husband 90 next mo. I’m his caregiver for diagnosed Lewy body dementia, plus other major health concerns. I’m just stressed as to this waiting stressful time... and pain.. major spinal pain too, neurosurgeon says I need ‘lamenectomy’ I’ve tried Mayo 3X for help in Jacksonville Fla. they are near my 2 daughters who could help me recover and for my husband, but I cannot seem to get their help. My husbands issues are also inconclusive as to his dementia... and major autonomy blood pressure issues. NOH... neurogenic, Orthostatic Hypotension., which makes his falling more prevalent.