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I had MDS with A TP53 mutation. I agree with all that was said. None of us have the very same symptoms. I had finished with one cancer and chemo a year before and my blood numbers were low. Platelets for sure keep going down. The others were low too. I had been a platelet donor for 25 years. I was told i could wait. No treatment may give me 5 years. I also had Brca2. I chose a transplant at 63.

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Replies to "I had MDS with A TP53 mutation. I agree with all that was said. None of..."

@katgob

I read your note and wonder how you are doing today?

I am 63 and told I might need a transplant (not sure why my Dr said that). I had one bone marrow biopsy but it wasn’t done correctly so I am waiting to get a second scheduled. I have Essential Thrombocytopenia but from some of the Dr’s comments I think there is still more to be revealed.

I hope you are doing really well post transplant.