← Return to Length of incontinence after radiation treatments for prostate cancer?

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Profile picture for suzdog @suzdog

I had 28 treatments of photon/IMRT and have significant side effects with urination and bowel movements 7+ months later. If I had done my homework I should have found somewhere to go for proton/IMPT treatments because of this data. Protons have unique physical properties, allowing for even better dose sparing to surrounding healthy tissues, especially for cancers in the head and neck.
The comparison between IMPT and IMRT often highlights IMPT's potential for reduced toxicity and improved quality of life. My quality of life has suffered as I need to be by a bathroom every 2 hours when drinking liquids and it burns when I go. My bowel movements are 3 times a day now with lots of gas. The oncologist that did my treatment plan really fried my insides. My PSA has already dramatically dropped so I am convinced what he did was overkill. The oncologist I see now said he is very surprised how fast it went down. Anyway, Good Luck with your treatments.

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Replies to "I had 28 treatments of photon/IMRT and have significant side effects with urination and bowel movements..."

@suzdog
Unlike decades ago there are many experienced proton medical facilities today. Medicare and most insurnance now cover proton unlike even a decade ago most did not.

I was throughly briefed by Mayo R/O and UFHPTI the major difference between photon and proton radiation. They both have the same success rates but the main difference is the radiation stopping at programmed spot (Proton) versus conintuing through body and through normal tissues, organ, bonds like Photon does.

Based on that I chose proton. It meant a hour drive to and hour drive back versus 20 minutes to Mayo Jacksonville but Jacksonville could only offer photon radiation.

Same thing. 28 radiation sessions, and 2 years of Eligard. That was 2 years ago, and still
endless peeing. If I dehydrate I can cut it back some. How can a 16oz bottle of water turn
into a half gallon of urine. I'll never understand it.