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anyone have any issues with hydroxychloroquine? (I think it's also called Plaquenil) my eyesight has started to blur a bit. I was taken off methotrexate due to tolerance issues now this (have an eye test week after next).

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Replies to "anyone have any issues with hydroxychloroquine? (I think it's also called Plaquenil) my eyesight has started..."

@tisme I take hydroxychloroquine and was told that it can impact your color vision. I go annually for a test with my eye doctor that checks my ability to see red/green all over my field of vision and they check my macula as I guess this can also be an issue. This is in addition to my regular annual eye exam.

@tisme I had some vision issues with Plaquenil. Some blurring and little spots that would appear, felt like gunk in your eye, very bothersome. I didn't link it to the Plaquenil until I went on a trip for four days and forgot it and the eye symptoms completely went away. I talked to my Rheumatologist and eye doctor about it and went off of it. No more issues like that. Although it's rare, my eye doctor did tell me that Plaquenil can cause a sudden onset type of vision loss if you don't get help right away. It is rare, but if you're the one it happens to, not good. Methotrexate caused nodules for me and I had to go off that too. I did not feel good either while taking it - Brain Fog, and felt like I was being poisoned. My body is sensitive and I have other health issues too so it's a real "joy" finding something that works. Keep trying an you'll get there. It may not be 100%, but it can be better.

@tisme I was going great with Sulfasalazine, which sorted my GI issues out well until that caused me visual disturbances (lightening flashes in corner of one eye) and blurred vision. I am about to start HCQ instead! Now I’m concerned. Unable to get an emergency eye appointment too, to check my eye issue was due to Sulfasalazine. I haven’t got any good advice for you other than to keep asking for something else to try, but I empathize completely. Good luck.