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Has anyone been prescribed Everlimus as an immunosuppressant med?
Transplants | Last Active: Sep 29 11:54am | Replies (14)Comment receiving replies
Question: why do you have to pay for your immunosuppressant meds? At one tine, yes, they were covered for only the first 3 years (which truly makes no sense as we need these drugs for our survival.) But now they are covered indefinitely....unfortunately not the meds one must take to.counter the side effects of the anti-rejection meds. (e,g. One of mine raises cholesterol and must take Lipitor (luckily I have good insurance)
But back to my original guestion...glad I'm not the only one who is wondering about Everlimus. I've taken Sirolimus since my transplant in 2005. Long term I developed AVN and have 2 titanium hips, a knee and a humerus (which wasn't humorous), but truly to keep this kidney, what's a little metal in the scheme of things?
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@charlie5454s
I believe the free 3 years applied only to kidney transplant, no other organ. Am I wrong? I agree it does not make any sense! I had to pay for immunosuppressant drugs from day 1 of the liver transplant 27 years ago. I have been on Medicare for the last 10 years, so my medications are managed by the plan on Part D. My cost is whatever Humana/Centerwell deems to be the price but I always do like Rachel5239 and look up GoodRx to compare prices and use what is best. I have checked other outfits like Mark Cuban Cost Plus and Single Care and found that GoodRx is really the only option that is consistent and requires the least amount of personal information. I am sorry to hear you have AVN - bummer! None of us on long term immuno suppressants come out unscathed, I got cancer and marginal kidneys from it - but....I am still alive with good quality of life.