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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Oct 2 10:08am | Replies (1104)

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Profile picture for planxty7 @planxty7

Patty, thanks for all your responses here. Blood work and hematologist next month where I will ask that same question you posed about what results should be concerning. Great question.

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Replies to "Patty, thanks for all your responses here. Blood work and hematologist next month where I will..."

@planxty7
HI Patty , I have had MGUS diagnosed for a little over a year. Yet looking over my past bloodwork 'and I see areas that were showing before official diagnosis. Actually I am told my blood work appeared in 2017 and only acknowledged last year as MGUS. Some primary docs see a lot of MGUS and some do not worry about it. Hematologist are very active but you have to be your own advocate. Apparently there are many with MGUS. I am showing protein in urine . Oncologist wants a 24 hour urine before my visit in January. I did have a hip collapse ( bone was powder) in my L hip and had a hip replacement. I am also told that people exposed to the World Trade Center disaster have a higher rate of MGUS than just regular people. Actually 40% if I remember the conversation. . I happened to be working in area at the time. And I am registered with the WTC victims compensation organization..And I have MGUS for over a year. So if you were anywhere near the area or have friends in the area let them know to get at least a baseline blood test. My son was right there and scoffs at me for the recommendation. Best of luck.