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Entyvio and hair loss
My daughter had a Crohn’s flare this past year which culminated in surgery in August. During this time she has lost approximately 40 pounds. She came through the surgery fine but had no appetite and found it difficult to eat after the surgery. She is finding out what food she can tolerate now. She has been on Entyvio infusions and her last one was in September. Her hair is falling out by the handful. She is taking several medications, but we are thinking it is the Entyvio. Has anyone with Crohn’s suffered a severe hair loss? Has anyone had this happen due to Entyvio? Has the hair loss been permanent or does it grow back after a while?
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She takes vitamin D and gets vitamin B 12 shots. She does not take other supplements because she takes so much medication. She does not want to cause any problem with them.
Good afternoon, I am two loading doses in and my hair is falling out in clumps. I’m so upset about it. Did anyone respond to your message here? Does it stop after the third dose and does biotin/vitamins/special shampoo help? Thank you.
Hi, @doyle78 - much earlier in this same discussion on vedolizumab (Entyvio) and hair loss, a moderator posted this study, which seems to point to the disease as the culprit in hair loss:
- Frequency and associated factors of hair loss among patients with inflammatory bowel disease https://www.wjgnet.com/1007-9327/full/v21/i1/229.htm?appgw_azwaf_jsc=j_aG-Yy17Ws1KrPH_2BKEoviqDav7vTPjKxEuQ9zxJ4
Yes, I saw that and have read that on other sites, however, I’ve been diagnosed with UC for ten years, on mesalamine for about five, and have never had an issue with hair loss until I began the Entyvio, just like the post that I was responding to. I understand that hair loss is associated with IBD and mesalamine and is not a recognized side effect of Entvio but these posts indicate that it does happen. Now it may not have been a side effect discovered in the study or the occurrences were so rare that it was not a requirement to list hair loss as a side effect, but to me, it is the only thing that I did differently and seeing that others have had the same experience validates my experience.
I appreciate your response and look forward to any other people having a similar experience. Thank you!
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1 ReactionIt might have been the anesthesia or stress. I was on Entyvio for about 5 years before it stopped working.