Long Covid: TWO YEARS NOW.

I'm so sorry you are suffering. It has been five years for me. It is very discouraging not to be who we were before this disease. I hope you find relief, even if in small ways. I moved across the country to leave a job that required very heavy travel and left me even more exhausted. I can breathe better without severe cold in winter and wildfire smoke in summer. However, fatigue remains and not sure how I can manage to work six more years before I can retire. You are not alone.

I have had covid 2 years now and have tried everything. My daughter just told be of a man who had it and his doctor put him on a 5 week very strick food program. I'm trying a version of it and now on day 8. It is "Whole30 "...no dairy products, no wheat or grains and no sugars or preservatives for 30 days. You can eat fruits and veggies and meat..all fresh or frozen. That man is well now and I'm hoping it will help me. Basically clean eating. I will post results after...

Almost 2 years here also but mine is up and down - every time I think it is going away it comes back. Will be interested to hear the results of your Whole30 program - hope it helps!

I am five years into Long Covid and feeling better due to low dose naltrexone. When I eat no sugar, I am almost pain free the next day, fatigue is cut in half, I can walk half a mile each day and my palpitations stop. I still have to watch my energy use or will crash when I expend too much. I am 8 months into the naltrexone and it is a life changer…

You have to start at a low dose of .5 or 1.5 mg per day. Then you titrate up every few weeks with a goal of 4.5 mg. People do well at different doses so you have to find the dose for your body..,rule of thumb is if you increase the dose and feel worse, drop back to the prior dose for a few weeks and then try increasing again. I tried moving from 3 to 4.5 mg several times and when I was able to, it finally made me feel better than I have post covid.

I have my naltrexone formulated at a compounding pharmacy in a liquid so it was easier to increase the dose. It costs about $40 per month and it not covered by insurance. It is the best money I spend for the return it gives me.

Thank you so much for this information!! I will definitely try it! No sugar helps with all my hurts and you might try this for inflammation...was told by an India person and it has helped too! 1 tsp ground ginger, juice from 1/2 a fresh lemon, squirt of honey in a glass of water every morning. My stomach would not handle the ginger so I now add it to my smoothie. I am now going to follow up on your suggestion! Thank you again...

I think the key to this is to address health issues we're experiencing after having COVID, rather than looking at this as "long COVID."

I think doctors tune us out if we say we have long COVID because they don't know what to do with that.

It is SO HARD to get a physician in your corner when you have so many things going on.

Fatigue is a symptom of so many illnesses. I think we have underlying illnesses that are not diagnosed causing our symptoms.

Because of our genetics, the state of our immune system going back to our childhoods, and our bodies' individual reactions to the COVID virus, I believe we are all experiencing various illnesses, not one disease: "long COVID."

I have also come to believe that many of these illnesses are hidden autoimmune disease triggered by the spike protein.

It's just awful that so many people are blown off and are experiencing horrible quality of life issues with no answers.

I've had multiple illnesses since December 2023. Only recently have I gotten any potential answers, but only because I have had to advocate HARD for so long and spent my own money on labs, that finally, finally showed a huge irregularity, which led to further testing.

I was recently in the ER for stroke symptoms and the inability to bear weight on one of my legs.

I didn't have a stroke.

One issue was identified: a likely ongoing internal shingles infection since I first had COVID in late November 2022.

I also found out that I likely have secondary adrenal insufficiency, but I've had to wait several months to get into an endocrinologist qualified to address it.

That's just part of my story, but I want to encourage you to not think of what is going on with you as "long COVID", but as a possible cascade of other illnesses triggered by the virus!

@klf58 thanks! I am sorry that has been five years for you! Gosh, that is a long haul. 🙁 The fatigue is a major problem seems like across the board.

@taunya6543 thank you. Yes, I too am on a strict diet. I cannot eat a whole meal, I have to snack due to the stomach problems. Hope it works out for you.

@drbf thank you for telling your story too. It is all a mystery.

There is help out there.
Pain and fatigue study center at Mount Sini in NYC is doing research on LC. Doctor Benjamin Netleson
212 844 6768 or get on the Mount Sini my chart website.
Misha Bear