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Profile picture for marynoelle @marynoelle

@loribmt I find your words very encouraging. I was diagnosed with CLL in November of 2023. I’m still considered stable. No treatments needed to date. I find the disease is always in the back of my mind and with every new ache or pain I do get concerned. It’s hard not to! Your comments always help! I have bloodwork every 3 months. Lymphocytes and Leukocytes always a bit high. All other results are good.

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Replies to "@loribmt I find your words very encouraging. I was diagnosed with CLL in November of 2023...."

Good morning, @marynoelle. I know what you mean about having something going on in the back of your mind such as a diagnosis or whatever little bean that got planted which really doesn’t need any tending. And certainly doesn’t warrant encouragement…but it can take root and bloom into thoughts out of our control! 😳 We humans seem to have that knack for always letting our mind wander to the ‘worst case scenario’, which is often just some vague notion and seldom becomes reality! So we end up wasting so much time, energy and peace of mind worrying about nothing!

I found this quote a while ago and I know I’ve shared it with Connect before. There was no author cited but it was impactful.
“Fear does not stop death. It stops life
And worrying does not take away tomorrow’s troubles.
It takes away today’s peace.”

While it’s ok to note you have a condition that may need attention someday, it’s important to not let it define you. IF something progresses and you need treatment, that is the time to deal with it. I know being in active surveillance can feel a bit unsettling. I’m flagged as active surveillance too, even though I am in full remission. But for me it means my doctor is vigilant to catch any potential issues in the future and until IF or WHEN that happens, it’s for him to worry about, not me. ☺️

I read (and saved) an article on Watchful Waiting the other day from Roswell Cancer Center. It gave such a good explanation for why active monitoring and delay of treatment in some cancers such as CLL and lymphoma is the better option! Maybe you’ll appreciate it too. Here’s the link:
https://www.roswellpark.org/cancertalk/202501/what-watchful-waiting-lymphoma-or-chronic-leukemia
Not sure where you live, but right now in northern Wisconsin we’re enjoying glorious autumn weather! Enjoy your weekend and no ‘what if’ thoughts allowed. 🥰