← Return to Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

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Profile picture for jackiecarey @jackiecarey

hello,

I have polycythemia Vera JAK2 positive..the JAK2 Positive version is a more severe form..I se a specialist at a major academic institution in Houston. Ive been advise to drink at at least 8 glasses of water throughout the day..Your phlebotomy sounds like dehydrated or sluggish thick blood.. I'm 77 and been treated for it for 3 years..I'm on hydra 500mg 7 days a week, baby asa and now since I had a TIA I'm also taking praxada...I don't have a problem with the hydra anymore, ive learned to eat small meals, take the hydra in the morning with a little food ..A cup of black coffee in the morning and then only water the rest of the day. I do get fatigued and have some insomnia but I am 77.. Ive had 6 phlebotomies over 3 years without issues. I haven't had any illnesses over the 3 years..I was very upset when first diagnosisedt but I learned to educate myself, understand the illness and if I can't exercise because of fatigue so be it. Hope some of this helps....Feel free to contact me anytime..

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Replies to "hello, I have polycythemia Vera JAK2 positive..the JAK2 Positive version is a more severe form..I se..."

@jackiecarey
My husband is dealing with the same issues. Your information was very insightful. I have also read that drinking water is very important for this condition. How did you know that you are JAK2 "positive"? What are the other versions? Why is the positive version worse?