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Psoriatic Arthritis: How do you manage PA and flares?

Autoimmune Diseases | Last Active: Sep 23 11:36am | Replies (128)

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@fransav

Hi! I've had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, & then finally Enbrel. Developed BOOP (lung disease), then MAI, so I needed to come off biologics. Went on Otezla that worked for a little over 2 years, then it stopped working! I'm in tremendous pain, and using prescription strength Advil. Ive been placed on meds for the MAI ( 3 antibiotics, 3X a week for 12 to 18 months) & hopefully, after 3 months, I can go back in n the biologics. Does anyone else have a similar situation? Thank you.

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Replies to "Hi! I've had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, &..."

i did not write to hurt anyone. what is going on here? what have i said? please tell me. this is not good for anyone. there is a hurt going on here and it is not coming from me. am i not supposed to be upbeat at times. i refuse to be constantly depressed. it is not healthy.

what did i say. what were my words so i may not repeat what is hurtful to you.

@peach414144 You have said nothing wrong as far as I can tell. I was just trying to explain you may have been misundetstood and to not take it personally. I am of the mind set to just let it go. Be yourself and stay upbeat!

I feel for you! I'm 69 and have tried Enbrel, Remicade, Cimzia and have just now started on Humira. I'm waiting for the axe to fall as to the copay. I liked Enbrel a lot, but we are both retired now and can't afford the copay.

I am 51 and can not take embrel or humara because of cancer. I have been put on otezla, hopefully that will do something. I was on tremedol for years, then had to be upped to norco for about five years then to morphine and percocet. Sucks having this because alot of doctors don't seem to know much about it except for the rhemotologist.

I also have PSA. I'm sorry but what I will write may not be useful for you

I was on various Biologics for 30 years and did very well. In Nov the one I was one stopped working and I have tried 4 others without success. I guess the TNF blockers are not working anymore for me. I met with my Rheumatologist recently and now she's saying that my symptoms, which is that in various places in my lower body , it feels like I'm on fire, sort of.
She said that I may have fibromyalgia because I have no swelling. This is weird to me, how does PA morph into fibromyalgia? I had some blood work done, so I'll see. I am planning to see a rheumatologist at Hopkins who only sees people with PSA. I think that if what you're dong is not working you should go see someone else for a consult.