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What do you do when one lymph node on PSMA is inconclusive ?
Prostate Cancer | Last Active: Sep 28 3:33pm | Replies (45)Comment receiving replies
@rbtsch1951 Thank you for connecting. I’m 77 now with original diagnosis at age 70. I had IMRT to my prostate, pelvis and abdomen (para aortic nodes) due to PSMA findings. Aggressive treatment given inconclusive PSMA report. Finished treatment on July 31. I have been taking Orgovyx for 9 months. Side effects from hormone therapy are fatigue, brain fog but no hot flashes. Side effects from radiation are fatigue and diarrhea. After two months the diarrhea is finally improving. The spontaneous diarrhea has made exercise impossible. The exposure to these treatments has left me completely void of any sex life. First follow up PSA came back as undetectable. My urologic oncologist is not part of my treatment team. All of my many MRI’s indicated no spread of the cancer outside of the prostate. How are you doing? PS all of my treatment was at the Ohio State University Comprehensive Cancer Center in Columbus, Ohio.
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@johnw22
Glad to hear you are weathering the storm and, though the side effects are present, it sounds as if you are doing well for the most part.
While on Active Surveillance it was easy to deny that PCa would ever be a threat. Now, the reality is rapidly sinking in and weighing me down.
I have received 3 of planned 5 SBRT treatments and am 2 weeks out from my first Lupron injection. I am easily fatigued, experiencing moderate bladder irritability (now have tamsulosin added to my regimen) and have intermittent mild transient nausea. I had diarrhea for the first time this AM. It remains to be seen if that continues. (I did receive a hydrogel rectal spacer before the start of SBRT to reduce the risks of radiation colitis.)
I worry mostly about the loss of libido and ED, especially since my spouse is quite a bit younger than myself.
Still, I try to remind myself how lucky we are that good treatments for PCa exist, but I admit it takes a concerted effort not to think more negatively.
I know we proceed and process one day at a time.
Hopefully things will continue to go well for you.