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AML successful treatment

Blood Cancers & Disorders | Last Active: 16 hours ago | Replies (54)

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi Joan. AML can be one tenacious menace, especially with some of mutations that present challenges along the way. Waving my hand in a ‘me too! me too!’ symbol of solidarity with your husband. I know exactly what he’s is going through and the roller coaster ride of both health and emotions for both of you.
The day of my diagnosis I had 80% blasts and 3 mutations tossed in for good measure. Together, for my husband and daughter, I forged ahead with aggressive chemo for several months and then had my BMT at Mayo-Rochester.
While the journey wasn’t easy, I am alive and healthy today because of the path we took! The BMT was a 2nd chance at life. I’d be gone for at least 5 years by now…
So please, if there is anything I can help you with or any questions large or small, don’t hesitate to post them. We have an ever-growing group of, whom I refer to as my BMT Posse, who are here to offer encouragement, support and hope when you need a lifeline!
Here’s a little bit about my journey and how I became a mentor in this group, in an article Mayo staff writer’s published a few years ago. https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/mayo-clinic-connect-brings-together-2-women-with-leukemia-46-years-apart/

Wishing you and your husband all the best during this veer from the norm!
Do you live near Rochester or have you had to relocate during your husband’s stay?

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Replies to "Hi Joan. AML can be one tenacious menace, especially with some of mutations that present challenges..."

We're from DSM, where our 2 children, 4 grandchildren, the best Golden retriever in the world also live. We had our consult with BMT doc today & hubby (Phil) will be having his when all the moving parts become aligned in 3-6months. We don't know whether to buy, rent, airbnb, or what- but we are looking at a long stay in Rochester.
Things move so quickly & change even faster that I 'know' to take it as it comes...But I feel if I can do anything now, it has to br better in future.
Im rambling, Im sorry
Im scared
Im grateful to Mayo & people like you who are giving me hope.
Joan