@auntnanny, When I attended the MAC conference this past
spring, it was mentioned that Lab Corp and the like are not thorough when
testing for these kinds of mycobacteriums. That is why I go to research
institutions where I KNOW they are doing it right. NTM Foundation is trying to
pass a law that the independent labs HAS to test our samples right down to the
SPECIE of MAC.
 

@auntnanny Jan, either you or your Dr. can call that lab and have them test
your sputem right down to the SPECIE. Most labs do not do that. It is important
because it effects what antibiotic they will use that will work. Not all
recommended antibiotics work on all MAC infections.
 

Thank you....... when I do next sputum test, I will ask the doctor to specifically ask for a pseudomonas and MAC result

Am wondering (just had a bad night)..... do others have horrible insomnia and night sweats with bronchiectasis? When I was diagnosed, Dr. Moua asked me if I had night sweats and I said "no" because at that time I did not. For about the last 6-8 months I really suffer with them. Sometimes it won't happen, but far too often it does. I change nightclothes 2-3 times. Haven't really slept all night in 20 years. Sleep for about 2 hours -- then get up for a while -- go back and can sleep two more hours, etc. Have tried Melatonin but didn't think it was helping at all. Just wondering if this is part of bronchiectasis??????

I will definitely be sure pseudomonas is specifically mentioned on my next test. -- thank you. I was treated with cipro for it the one time it was picked up and I stopped coughing for about 4-5 weeks. When I started again, another test was done, but at that time they did not report pseudomonas. So, was given a different antibiotic and again, after that, I was clear for about a month.

Hi Jan, yes, night sweats can be a symptom of bronchiectstasis and the infections we get from having it. I have read from many members on this forum that they deal with night sweats. For some of us, it is also menopause, sometimes hard to tell what is causing the sweats. You can mention it to your Dr. just to make sure nothing else is going on. I have them in diff levels of severity. Usually, not too bad. I turn my thermostat down to 70 and use only 100% cotton sheets and covers. Anything polyester tends to hold heat and make you feel like a rump roast in the oven. Anybody else have input about 'night sweats'? -Terri M.

Thanks so much for the reply. Since I'm 76....... can't blame it on menopause but just am glad to know others may experience the same.

@auntnanny No,
Jan, you are not alone with this. I have read it over and over again on this
forum. About insomnia due to night sweats. I forgot to mention that besides
turning the thermostat down, I also sleep with an overhead fan on. (and sleep
with one leg out of the covers) Honestly, despite all that I do to try to stay
cool; I am still throwing the covers off and on all night long. I just go with
it.....
 

Thank you...... normally I am cold all the time and feel very cold when I first go to bed, but after a couple of hours, the story changes. I still feel "cold", but am doing a lot of sweating. I can live with it...... just complaining again....

@auntnanny Jan,
I am chilly all of the time too. It is 98 degrees outside, my thermostat by day
is set to 74-75 and I wear a super thick robe/jacket in my house most of the
time. Same here, crawl in bed, I am cold, hours later, burning up! I am so used
to it that it doesn't even annoy me anymore. I just roll with it. I can do that
because I am not soaking my pajamas two to three times a night like some of us
on this forum. That happens maybe once every several weeks. But hot, yes, every
night.