Recently diagnosed with Gastroparesis

Posted by lusi0610 @lusi0610, Jul 6, 2024

Hello I’ve recently been diagnosed with Gastroparesis and have a question please. I read about a lot of you with g-tubes and implants. Can I ask how long did it take you to get to that point? I’m very scared to think this happens to most at some point.

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After I had my appendix out I had Gastroparesis and the only thing that would help was to walk and chew gum at the same time. Sounds like a bad joke but it worked. Couldn't even keep water down.

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Profile picture for tsch @tsch

Be careful with Reglan- can have serious and permanent side effects. My daughter takes a med called motillion, has to get from Canada, but prescribed by USA docs. And approved in Europe but not USA. She will not use Reglan. There are books that should help you choose foods, and you need to learn your own tolerances.

My daughter was diagnosed after multiple instances of vomiting black, undigested stomach contents. She does manage ok now and I hope you will too.

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Thanks for this info, I am going to gastro next week for some answers on same subject, (Stomach emptying test) I guess my test was mild gastroparisis.
Thanks

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Not sure about mild. But if its mild that is good

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I have no comment. Had a misspelled word tried to fix. Have to comment alas

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I’m in the U.S. and motilliom isn’t approved here. If I can get a doctor to prescribe it to me, is there a pharmacy in Canada that ships to the U.S.?

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Profile picture for tsch @tsch

Not sure about mild. But if its mild that is good

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Was diagnosed with mild 2 years ago but guess it's not so mild anymore.

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Maybe is time to be checked again if you have problems eating. Seems reasonable to me

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I was diagnosed 4 years ago with severe gastroparesis. Dehydration, Malnutrition and Iron Deficiency has put me in the hospital several times, many ER trips for IV drips due to severe dehydration. My diet is very limited, mostly to liquids or soft foods. I can not take pills of any kind because of the stomach acid and constipation caused by most medications. I have to get Iron Infusions for anemia. I have learned to live with it, the only reason I am not wearing a feeding tube is because I can still swallow with the help of endoscopy every 2 years. I also have Erosive Esophagus. I do a lot of research and what works for most, doesn't work for me.

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Your situation is not everyone's and hopefully doesn't frighten original poster. Bottom line is figuring what works, like you say.

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Hi, @lusi0610 - the mention of you by @tsch made me want to check in on you and see how you are doing. What has happened with your gastroparesis? Did you end up having an intervention of some kind by your diagnosing physician?

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