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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Oct 2 10:08am | Replies (1104)

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@maddie2023 I feel you. I did not like gabapentin either. I am taking 200mg daily of pregabalin now. No side effects but I’m not sure it’s doing much to change the narrative.
I keep moving. The pain that I get in my toes is sometimes pretty extreme. I just push through it and keep on keeping on. At 72, I think being able to do that is going to be a pretty good adaptive life strategy.
Water aerobics has helped a lot of my friends who are arthritic and although it’s kind of a pain because we don’t have a heated pool in my community, I think I’m going to drive to use the heated pool in a nearby community.
I’ve also been doing physical therapy due to a fall and that has helped me tremendously by strengthening my core. I guess Medicare has a lifetime cap on physical therapy and I am reaching that maximum. I think that’s ridiculous because physical therapy can assist in keeping people out of nursing homes and help them live more independently even with physical limitations. I have my last session tomorrow and after that I plan to replicate what I’ve learned in physical therapy at the senior citizen center and work out on their machines and with free weights
I hope you can find some relief. If you find something that gives you good results, please do post them.

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Replies to "@maddie2023 I feel you. I did not like gabapentin either. I am taking 200mg daily of..."

@pmmpmm - thank you so much for all the helpful information. I find that moving around is my best bet too. The night time comes around, and then oh well, it's a gamble on what type of night it's going to be. I find relief in the pool also. I would definitely get to that heated pool if I were you. I'm trying to find out about physical therapy myself. I'll take anything I can do for even if just one day of comfort....

In the meantime I have a foot massager, which has a vibration mode. I use it once (sometimes twice) a day. It gets the circulation going and improves nerve function.

I've been diagnosed with MGUS and also taking gabapentin. I'm finding I have extreme fatigue after about an hour of a dose. Would you please explain to me what your side effects were? I told my PCP that I thought it was the gaba that was causing my sleepiness and he said he had never heard of that. Thanks!