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Replies to "Primary myelofibrosis was diagnosed in September 2019. Have had monthly transfusions, usually 1 pint, with HGB..."
Blood Cancers & Disorders | Last Active: Sep 23, 2025 | Replies (11)
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Replies to "Primary myelofibrosis was diagnosed in September 2019. Have had monthly transfusions, usually 1 pint, with HGB..."
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Hi @sandy150bates. I agree, it’s so helpful to be able to speak with other people who are taking the same meds or have the same diagnosis…great anxiety reducer. @wakeley shared their experience with high ferritin and chelation with Deferasirox with you. Were you able to see this comment?
https://connect.mayoclinic.org/comment/1397579/