← Return to Chelation therapy

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Chelation therapy

Blood Cancers & Disorders | Last Active: Sep 23, 2025 | Replies (11)

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Primary myelofibrosis was diagnosed in September 2019. Have had monthly transfusions, usually 1 pint, with HGB levels hovering around 6.1. Ojjaara was approved in September, 2023 and I started taking it in October, 2023. Since my doctor was concerned about the high ferritin levels, 1600 to 2000 since January, he recommended Chelation therapy and gave me information on deferasirox. Side effects were a great concern until I starting reading up on problem associated with high ferritin levels. It would help me mentally if I knew of others who are now on Chelation therapy.

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Replies to "Primary myelofibrosis was diagnosed in September 2019. Have had monthly transfusions, usually 1 pint, with HGB..."

Hi @sandy150bates. I agree, it’s so helpful to be able to speak with other people who are taking the same meds or have the same diagnosis…great anxiety reducer. @wakeley shared their experience with high ferritin and chelation with Deferasirox with you. Were you able to see this comment?
https://connect.mayoclinic.org/comment/1397579/