In pursuit of who, what, how, and why: Meet @pb50

Sep 18 8:00am | Teresa, Volunteer Mentor | @hopeful33250 | Comments (38)

Member spotlight, meet pb50

TERESA: What brought you to Mayo Clinic Connect?

@pb50: I suspect I sought out Mayo Clinic Connect for the same reason many do — out of fear and panic during a health crisis. For me that was when I learned the nodule my doctor and I had watched grow slowly for four years was found to be malignant. 

TERESA: What motivates you to take part in Mayo Clinic Connect?

@pb50: The community is a tremendous source of knowledge and emotional support between people who share a common experience. 

TERESA: What about Mayo Clinic Connect makes you feel comfortable to share and to be open with the community?

@pb50: I recall exactly the emotion I was dealing with during diagnosis and treatment. So, if I can help someone take a breath and approach the next steps with acquired knowledge and comfort from the community, I will. Perhaps I have helped someone gain confidence they can use to face health adversity successfully. 

TERESA: What support groups do you participate in?

@pb50: I take part in many of the support groups on Mayo Clinic Connect. You’ll usually find me in these groups and more.

TERESA: What surprised you the most about Mayo Clinic Connect?

@pb50: I have been surprised at the kindness, civility and the desire to impart personal experiences. So many online communities have some degree of hostility for one reason or another, and gratefully none of that negative energy is here. Maybe the occasional outburst borne out of frustration, but even that is rare. 

TERESA: What energizes you, or how do you find balance in your life?

@pb50: I am a learner and I am constantly pursuing who, what, how, and why. I am retired now, so compared to long hours working, I don’t struggle much with balance any longer. I am active in my church, focusing right now on food insecurity in our community. I also talk frequently with my children and my grands who are spread out from the west coast to the east coast. 

TERESA: Tell us about your favorite pastime or activity.

@pb50: Reading, spending time with my family, learning more about some of my ongoing concerns as I age, such as cognitive decline.I’m looking into whether the cognitive decline is age-based or some form of evolving impairment. So right now I am reading research and learning how I can best arm myself for the fight with diet, exercise, and trying to form new neural pathways in my brain by using practice tests for pattern recognition, logic and reasoning.

TERESA: Do you have a favorite quote, life motto or personal mantra?

@pb50: LOL. I am a former Marine. My motto is “If you aren’t the lead dog, the view never changes.”

TERESA: What food can you simply not resist? 

@pb50: Ugh. Sweets are my kryptonite. 

TERESA: What do you love about where you live or vacation? 

@pb50: After years of moving every couple of years for my job, I am loving being close to some of my family! 

TERESA: Puppies or kittens? 

@pb50: Kittens.

 

Member Spotlights feature interviews with fellow Mayo Clinic Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

See more Member Spotlights.

Interested in more newsfeed posts like this? Go to the About Connect: Who, What & Why blog.

Your motto gave me a chuckle but also food for thought this morning 😊. Thanks for sharing. It’s hard not getting anxious or frustrated with medical problems sometimes, especially when you’re in the treatment of “let’s wait until it grows or you get worse”; then when it happens you wonder why we were waiting. But attitude is important, as is faith!

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Profile picture for pb50 @pb50

Welcome! I have RA and when i have a flare, Prednisone is my go to. I know enough to know i can’t succumb to its’ siren call. 🙂
Some here are experts on the ups and downs and management of it. @dadcue is one of them.. and a damned nice guy to boot!

Just post if you are looking for input. Someone will speak up!

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We miss you on the PMR forum! I still think there is much we can learn from the experience people have treating RA and living with RA. Things in the PMR world are starting to change. Prednisone isn't the "only option" anymore. I am happy to say that I haven't needed prednisone for almost 5 years while still being treated for PMR.

It is nice to learn more about you. What did you do in the Marines? I was in the Air Force for 4 years. I had it easy in the Air Force and wouldn't trade my 4 years for anything. I have great respect for the Marines!

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Profile picture for Debbie @dbeshears1

Your motto gave me a chuckle but also food for thought this morning 😊. Thanks for sharing. It’s hard not getting anxious or frustrated with medical problems sometimes, especially when you’re in the treatment of “let’s wait until it grows or you get worse”; then when it happens you wonder why we were waiting. But attitude is important, as is faith!

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I just try to go after it just like I would have gone after a corporate result. I don’t always feel I have the tools or skills I need, but i always have attitude and fight. Just stay after it - whatever that means on any given day!

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Profile picture for Mike @dadcue

We miss you on the PMR forum! I still think there is much we can learn from the experience people have treating RA and living with RA. Things in the PMR world are starting to change. Prednisone isn't the "only option" anymore. I am happy to say that I haven't needed prednisone for almost 5 years while still being treated for PMR.

It is nice to learn more about you. What did you do in the Marines? I was in the Air Force for 4 years. I had it easy in the Air Force and wouldn't trade my 4 years for anything. I have great respect for the Marines!

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Everyone has it easy in the Air Force 😁

I fixed radios in the Marines. Not exactly a career path but I loved it.

I remember you had migrated to a Biologic as I recall? I am glad you are beyond Prednisone. I have some on hand but in my locked cabinet that is rarely unlocked. I love the damn stuff but the good Lord gave me a brain - and I know Prednisone doesn't love me. 🙄

But you are still the smartest dude I know about how Prednisone does what it does and how to manage your way off if you waited too long.

Good to hear from you. Be well.

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Profile picture for teenz1 @teenz1

Just joined from New Zealand and looking forward to connecting with folk on Prednisone and the drama that goes with this wonder Drug..

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Works wonders after you get the butt cheek ones

Then. It stops working

Then. You wonder whats going on

When that happens go seek "sciatica" specialist

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Profile picture for pb50 @pb50

Everyone has it easy in the Air Force 😁

I fixed radios in the Marines. Not exactly a career path but I loved it.

I remember you had migrated to a Biologic as I recall? I am glad you are beyond Prednisone. I have some on hand but in my locked cabinet that is rarely unlocked. I love the damn stuff but the good Lord gave me a brain - and I know Prednisone doesn't love me. 🙄

But you are still the smartest dude I know about how Prednisone does what it does and how to manage your way off if you waited too long.

Good to hear from you. Be well.

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"I fixed radios in the Marines. Not exactly a career path but I loved it."
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During my 4 years in the Air Force, I was an Electronic Warfare Systems Specialist otherwise called Electronic CounterMeasures (ECM). Sometimes it was called ECCM for Electronic Counter-CounterMeasures.

We jammed radars and did other cool stuff that was secret at the time. It was fascinating in the early 1970s. Some of the electronic equipment cost millions of dollars. We hung big heavy pods under the wing of an F-4 Phantom II. In a pinch, the pilots were authorized to jettison those pods so they could escape at faster speeds.

I was an 18 year old kid when I enlisted in the Air Force. I was only armed with a Jeweler's screwdriver and tweaked things most of the time. It didn't translate to the civilian world but I could have become a radio repairman.

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Yea I think my MOS was titled Electronic Communication specialist. The Marines really really didn’t want women, were the last branch to accept us and many never made an attempt to be fair. I was attached to the 3rd Air Wing - where the big egos lived 🙂 So I spent my time in a little building fixing radios the army had left behind when they upgraded. And still I loved it 🙂 I have always seen it as a win if I get an opportunity to add my footprint where women didn’t walk before. Even in a room the size of a storage shed repairing outdated and shot up radios 🙂

Nixon used to park AF1 at El Toro and take a helicopter to San Clemente.

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Profile picture for dbamos1945 @dbamos1945

Teresa, I appreciate your straight-shooter attitude and have gained much info from your posts. Thank you for giving patients the guidance to find ways to confidently trudge through our health problems. I’m lucky to have a “Lead Dog” like you!
dbamos1945

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Teresa, I just completed the information to join the Connect and then saw your post. The first thing I noticed was that your photo reminded me of a sunny morning. Next I read the "Lead Dog" comment. Together they said that you are a person who lives unafraid to go unafraid into the world of people, willing to help and befriend anyone you meet. The world needs people like you. Thanks for being so helpful. WOH

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Profile picture for pb50 @pb50

Yea I think my MOS was titled Electronic Communication specialist. The Marines really really didn’t want women, were the last branch to accept us and many never made an attempt to be fair. I was attached to the 3rd Air Wing - where the big egos lived 🙂 So I spent my time in a little building fixing radios the army had left behind when they upgraded. And still I loved it 🙂 I have always seen it as a win if I get an opportunity to add my footprint where women didn’t walk before. Even in a room the size of a storage shed repairing outdated and shot up radios 🙂

Nixon used to park AF1 at El Toro and take a helicopter to San Clemente.

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"I have always seen it as a win if I get an opportunity to add my footprint where women didn’t walk before."
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As a man ... that was how I felt about nursing. I was pushed and pulled in another direction though. I liked the patients and the bedside care the most. The life and death stuff was more exciting. It put things into perspective because I only had an autoimmune disorder.

I wanted to be assigned to any patient on corticosteroids when most of the nurses didn't want to take care of those patients. The nurses I worked with knew I took prednisone and said if I ever needed to be hospitalized they wouldn't take care of me. They weren't serious but they knew prednisone wasn't good for me. They always wanted to know how much prednisone I was taking.

Some doctors would rather that I crunched numbers for their medical research. I couldn't tell the doctors that I mostly felt that the data they collected was garbage because the nurses didn't follow the research protocol precisely. I was caught in an in-between world of medical research and patient care.

Some of the research projects were downright dangerous to the patients. I had to recruit those patients so I felt responsible for them. The research needs to happen though ... otherwise nothing changes.

I also did some managed care for an insurance company for a year or two. That wasn't a nice world because all they cared about was the cost of medical care.

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Profile picture for Mike @dadcue

"I have always seen it as a win if I get an opportunity to add my footprint where women didn’t walk before."
------------------
As a man ... that was how I felt about nursing. I was pushed and pulled in another direction though. I liked the patients and the bedside care the most. The life and death stuff was more exciting. It put things into perspective because I only had an autoimmune disorder.

I wanted to be assigned to any patient on corticosteroids when most of the nurses didn't want to take care of those patients. The nurses I worked with knew I took prednisone and said if I ever needed to be hospitalized they wouldn't take care of me. They weren't serious but they knew prednisone wasn't good for me. They always wanted to know how much prednisone I was taking.

Some doctors would rather that I crunched numbers for their medical research. I couldn't tell the doctors that I mostly felt that the data they collected was garbage because the nurses didn't follow the research protocol precisely. I was caught in an in-between world of medical research and patient care.

Some of the research projects were downright dangerous to the patients. I had to recruit those patients so I felt responsible for them. The research needs to happen though ... otherwise nothing changes.

I also did some managed care for an insurance company for a year or two. That wasn't a nice world because all they cared about was the cost of medical care.

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When years later I had transitioned to Neurophysiology diagnostics (EEGs, EMGs, Evoked Potential), I always had to bite my lip when clueless people would ask my male nurse friends why they didn't do med school.

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