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Replies to "Thank you so much for taking the time to share your experience with chelation for your..."
Blood Cancers & Disorders | Last Active: Sep 23, 2025 | Replies (11)
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Thank you so much for taking the time to share your experience with chelation for your high ferritin levels, @wakeley. I know your information will be very helpful to @sandy150bates who is just beginning this journey.
How long ago were you diagnosed with MDS? Are you on any other therapy for this besides having monthly blood transfusions?
Replies to "Thank you so much for taking the time to share your experience with chelation for your..."
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Primary myelofibrosis was diagnosed in September 2019. Have had monthly transfusions, usually 1 pint, with HGB levels hovering around 6.1. Ojjaara was approved in September, 2023 and I started taking it in October, 2023. Since my doctor was concerned about the high ferritin levels, 1600 to 2000 since January, he recommended Chelation therapy and gave me information on deferasirox. Side effects were a great concern until I starting reading up on problem associated with high ferritin levels. It would help me mentally if I knew of others who are now on Chelation therapy.