1. < Autoimmune Diseases
Profile picture for nickynoo

Does anyone else suffer with bad leg and back pain whilst being on aza

Posted by nickynoo @nickynoo, Feb 17 10:22am

Hi, I was diagnosed with Autoimmune hepatitis in March 24, I was very poorly and yellow, after spending 8 days in hospital, I was sent home with high dose of prednisone for 3 months then they added 100 mg of azathioprine, came off the prednisone in September, but have stayed on azathioprine ever since, my markers have been good for a good while now, but I still feel yucky, very tired, and I have a lot of leg pain, including pins and needles especially in my left leg, also back pain, my consultant has said he doesn't think it's anything to do with the azathioprine, just wandered does anyone else have any of these symptoms? Thank you,

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for nickynoo
nickynoo | @nickynoo | Sep 20 5:56am
In reply to @achillesiv "Hi , I was trailed on Azathioprine/imuran for a autoimmune disorder , which has very few..." + (show)
Profile picture for achillesiv @achillesiv

Hi , I was trailed on Azathioprine/imuran for a autoimmune disorder , which has very few drugs tested for it.
It gave me the most intense pain I have ever experienced, the pain in what felt like the bones in my forearms, was like them being lite on fire while being driven over by a 10 ton truck. I was taken off it, the pain went. I have a tendency to react very strongly to drugs that others have little to no symptoms on in general .Then micofenalate ( cell cept).
I'm became incoherent with extreme headaches.
Keep fighting your not alone.

Jump to this post

Thank you for your post, I am now of azathioprine as I had a relapse which is still here, I'm now back on prednisolone and on mycophenolate, it's taking ages to stabilise, and unfortunately i don't like the mycophenolate but have no choice in the matter

REPLY
Profile picture for sonnyforee10
sonnyforee10 | @sonnyforee10 | Sep 20 3:06pm

So it’s quite common I guess . My rheumatologist said my back wasn’t coming from my MCTD. Guess I better find a new dr

REPLY
Profile picture for sonnyforee10
sonnyforee10 | @sonnyforee10 | Sep 20 3:10pm

Thanks everyone for info. I’m not on any steroids at all. All I take is hydrocholriquene

REPLY
Profile picture for robertmayo1
robertmayo1 | @robertmayo1 | Sep 21 11:26am

I have AHS too. Taking 100mg of AZA per day and 10mg of prednisone. I stretch and walk every day. No problems. I am 68 yrs old and also have Clippers disease. Good luck to you.

REPLY
1 reply
Profile picture for nickynoo
nickynoo | @nickynoo | Sep 21 12:08pm
In reply to @robertmayo1 "I have AHS too. Taking 100mg of AZA per day and 10mg of prednisone. I stretch..." + (show)
Profile picture for robertmayo1 @robertmayo1

I have AHS too. Taking 100mg of AZA per day and 10mg of prednisone. I stretch and walk every day. No problems. I am 68 yrs old and also have Clippers disease. Good luck to you.

Jump to this post

Thank you

REPLY
View MoreView Less
Please sign in or register to post a reply.