Anyone have multiple chemical insensitivity (MCS)?

I actually take all of those things, I am seeing a functional medicine doctor as well. I will have to up the C and see what happens.
Thank you

I have severe MCS, but I do not have asthma. I’m not sure why people are advising inhalers for something you don’t have. Now some with MCS do have asthma, but not everyone does. There’s no allergist that can cure MCS. It is a disease of avoiding/controlling chemical exposures. Taking the right supplements can make life easier. 16 years into this and by trial and error, I can control exposures and symptoms.

You’re absolutely right. Very few people realize how toxic these products are. The billion dollar fragrance industry is self regulated and we’re paying for it with our health and our ability to live normally. I was exposed to a lot of chemicals in my work and I believe that was a factor as well.

Never knew there was a Topamax connection! I have MCS and have been on it forever! Thx so much for this. I just started a slow taper so am going in right direction!

Yes! I try very hard to be Extremely careful with everything. Environment foods personal care products etc. I wear a mask many places. Fortunately I live alone now as my Ex was not helpful.

Does anyone know if people with MCS should avoid certain medications or have hospital procedures modified? I need to take osteoporosis meds and have no idea if the risk is higher

@drsharon - that is a worthwhile question about whether people with MCS should avoid certain medications or have hospital procedures modified. Would the doctor who had the theory on the origin of your sensitivity be able to advise on this?

@lisalucier I will be asking my respirologist if he knows but the approach so far has been awareness of chemicals as the cause of my irritant asthma, avoidance of the chemicals and treatment of symptoms. My dermatologist referred me to a specialist to eliminate allergy as a cause but I don’t think they know how to broadly test irritation from chemical reactions. If I find anything out I will pass it on.

@lisalucier Hi Lisa, I was wondering if it’s okay to mention specific brands on this sight. For quite a while I didn’t realize that perfumes and scents and preservatives were triggers for me and I’ve recently discovered that my scent free detergent was still a trigger. I’ve found brands of detergent, soaps and shampoo that I find safe for me and would be happy to share the names if it’s ok. I also make my own body creams and cleaners. If anyone else has suggestions I’d like to hear them if it’s allowed. I realize we’re all different in out sensitivity but it might be helpful

@drsharon - as long as you are not mentioning any products you are selling, please feel free to mention any brands that have helped you or produced a reaction in you.

I use mostly scent free products for my personal care and in my home because some products cause me to cough or my lungs to tighten up. I also almost never wear fragrance anymore, and that used to be a daily thing for me. It might take me a long time to determine a scent free product was causing me problems, cause I would not easily suspect it.

Will you share more about what kind of reaction the scent free detergent was triggering in you and how you figured out that the detergent was causing it?