← Return to Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

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Profile picture for janetlen @janetlen

@asarnesejr I am curious whether you asked the Dr about the lack of response to the B12 injections? Also, with the mutation (ddrx1) noted in the pathology report, did he comment on that? @sherbs gave you some excellent advice about Mayo. If it were me, I think I would follow her advice. At least you will have a decision you can move forward with.

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Replies to "@asarnesejr I am curious whether you asked the Dr about the lack of response to the..."

The doctor wasn't concerned about the type of ddx41 r545h (vax 3%) that I had. He was surprised that the 10 B12 injections did not move any of my blood counts. He told me that my 1st BMB was very detailed and almost all of it came back negative.

He reduced my B12 injections to every two weeks and is aware that I stopped drinking on July 5th. Told me that my white blood cells are 'funky' looking. But that my bone marrow output was at 40% which is good for someone my age (61).

He told me he can't make a diagnosis, because he just doesn't know yet.

He ordered another BMB in 6 weeks (3-months between the 2) and wants to see me with a CBC at that time.

Meantime, I am a total wreck, crying daily, thinking I'm going to die soon.