← Return to Anyone have recurrence after the initial 6 BCG induction treatments?

Discussion
Comment receiving replies
Profile picture for krgordon @krgordon

I was diagnosed in 2023. I had a large urothelial tumor in my left kidney and never a single symptom. Found by accident when checking something else. After a lot of a quick research and prayer I found the doctor I felt would take care of me. My kidney and ureter were removed. After having no tumors in my bladder a cystoscopy at 3 mths post surgery found two tumors in my bladder. One was near the site where my left ureter was removed. Every 3 months I had a CT and cystoscopy. Everytime a new tumor or two. Eleven mths after the kidney surgery I had a partial bladder removal to get rid of the troublesome spot but the tumors kept coming. My doctor too wanted me to keep my bladder as long as I could. I did 6 BCG and had tumors after. Then 6 doce/gem. No tumor in my bladder but with folowup CT I had a tumor on the outside of my bladder. Within a week I was in the hospital for surgery. I trusted my doctor and told him to do whatever would be best for me. I woke up with a RC and a Neo Bladder. That was 3 1/2 mths ago. I certainly will not say it has been easy but I do know it could have been much worse as well. My Neo Bladder is working fairly well, all things considered. I know that it can take mths to get it working really well. The worst thing now is fatigue. I don’t have the energy I used to have for sure but it is coming back. I am a 77 yr old very active female. My Doc understood this and picked what was best for me.

Jump to this post


Replies to "I was diagnosed in 2023. I had a large urothelial tumor in my left kidney and..."

It took six months to train my neobladder. My surgery was last November. I'm glad you were healthy enough otherwise to have that option. That surgery is a big one! I can understand your continued fatigue. Hang in there! Hopefully you'll have clean CT results moving forward. All my best to you.