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I hit a wall with Hypertrophic Cardiomyothopthy nothing working
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 29 9:32am | Replies (15)Comment receiving replies
Yes i had mine done in Rochester MN by dr dearani and i understand he does alot of cleanups from other surgeons who did the procedure incorrectly!
Im really glad i decided to go to mayo for my diagnosis!
So many years being misdiagnosed and under diagnosed in my home town finally made the trip to phoenix and the day they saw me was the day he said myectomy was the best course of action for me!
Im 3 months out now:) and feeling good
Replies to "Yes i had mine done in Rochester MN by dr dearani and i understand he does..."
@brumasterj
At what point do they recommend surgery? I have HOCM and have taken Camzyos for three months. My third echo shows a reduction of ef so they stopped medication for a month until another echo.
Will continue med at a reduced dose if I rebound. But what if I don’t?
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@brumasterj I am so glad that your myectomy went well. I am hoping to have mine at the end of October and have been interested in the recovery process and duration...three months sounds hopeful to me. I am really curious about arm mobility, how much do we have in the first few weeks? And how long until full mobility? I am trying to plan ahead. Any advise would be appreciated!