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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 19 hours ago | Replies (1110)

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I’m smoldering. Going to a neurologist in Feb (that’s how long our wait times are) but I suspect the beginnings of neuropathy which is not uncommon for MGUS/SMM/MM. I learned about doing in bed foot stretches by a Tai Chi instructor. It’s basic; gently, slowly after waking and before getting out of bed, and with the covers off the feet, stretch them. Forward stretch, the other way, slow half circles one way, then the other, repeat. Wiggles toes. Key is gentle and slow. Feels good, gets the blood there and warms up muscles. Only need to do a few minutes. Then I put feet on floor and move them around, wiggling toes. Then I stand. Another thing is a rocking motion while standing. Hold onto counter until confident of balance. Rock forward then backward on feet. Some suggest doing the rocking while brushing teeth. I don’t! Walking is super great, I do about 4-5 miles throughout the day, less in winter. Sometimes I find stairs to walk to keep those muscles. Slowly down stairs to save the knees. Biking is great for knees, even a mile which goes by fast, I no longer bike on hills, now I choose mostly flat. I agree, move, move, move! Even if slowly and gently. We’ve already won the race, this is our well deserved cool down part of life.

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Replies to "I’m smoldering. Going to a neurologist in Feb (that’s how long our wait times are) but..."

I've been told to just keep moving around and walking (which I started doing around my neighborhood). Purchased a good pair of NB sneakers which are pretty much cushioned and make it easier for me to walk in them. I find sitting still just aggravates things so I try to not sit around that much. Good luck to you in February. Who knows maybe someday they'll come up with some solution. Right now my Dr pushes the meds. No thank you, I don't like the feeling I got after taking gabapentin for 4 days. That was enough to convince me I had to find other remedies....