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What is palliative care?

Caregivers: Dementia | Last Active: Sep 21 8:15am | Replies (22)

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I started the process of higher levels of care for my mother before we actually made a change. The starts were short term stays at memory care facilities. I did not realize they would accept patients for a week or two, but found that many would do that if they had The room to do so. Vacation of a week or two was a godsend for me. It also began the process of eventually moving her into a care facility full-time. In hindsight, I think the adjustment to a care facility is harder for the caregiver than it is for the dementia, patient. The beginning that process was short stays of a week or two, that would allow my husband and I to have a break and a vacation without worry, was a godsend.

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That respite care is very precious for caregivers. I had arranged admission for 10 days to give us a time to get rest, when the room became unavailable. Sigh. There is a shortage around here. Of course, this is self pay and expensive, but just necessary imo. I did discover that if the person is on Hospice they will make all the arrangements for respite care at a local NH at no cost for 5 days! It’s covered by Medicare. Transport too! I discovered that private pay for transport by ambulance is about $700.00 per trip!

Yes, it is harder on the caregiver. My husband had to be moved to memory care because he could no longer stand or use the walker so I could not care for him at home not sure at all if he understands where he is I do have to make sure that his care That he needs is given.