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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Oct 2 10:08am | Replies (1104)

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I have MGUS. Going through some pain with neuropathy in both my feet. I started walking in the mornings last week. First to take off the weight I put on, and 2nd to keep the blood flowing. Does anyone push themselves to walk and do you find it helps a little?

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Replies to "I have MGUS. Going through some pain with neuropathy in both my feet. I started walking..."

I’m smoldering. Going to a neurologist in Feb (that’s how long our wait times are) but I suspect the beginnings of neuropathy which is not uncommon for MGUS/SMM/MM. I learned about doing in bed foot stretches by a Tai Chi instructor. It’s basic; gently, slowly after waking and before getting out of bed, and with the covers off the feet, stretch them. Forward stretch, the other way, slow half circles one way, then the other, repeat. Wiggles toes. Key is gentle and slow. Feels good, gets the blood there and warms up muscles. Only need to do a few minutes. Then I put feet on floor and move them around, wiggling toes. Then I stand. Another thing is a rocking motion while standing. Hold onto counter until confident of balance. Rock forward then backward on feet. Some suggest doing the rocking while brushing teeth. I don’t! Walking is super great, I do about 4-5 miles throughout the day, less in winter. Sometimes I find stairs to walk to keep those muscles. Slowly down stairs to save the knees. Biking is great for knees, even a mile which goes by fast, I no longer bike on hills, now I choose mostly flat. I agree, move, move, move! Even if slowly and gently. We’ve already won the race, this is our well deserved cool down part of life.