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Keytruda & Fatigue: What helps decrease fatigue?

Lung Cancer | Last Active: 4 days ago | Replies (45)

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Profile picture for terrierlover @terrierlover

Congratulations on your progress! Sometimes, the attitudes of these doctors can be pretty disappointing; the way they often totally disregard the patients' experience isn't very professional or sympathetic at all. I've been treated that way on many occasions and have been proven to be correct in nearly all of my battles with them over the years. They often act as if you don't know your own body, or what you're talking about. When their solutions don't work, they often just double down on whatever, disregarding the fact that what they prescribed isn't working. They often give up far too easily on these issues and never get to the bottom of the problem. It's a big problem in medicine that really needs to be addressed. Doctors....LISTEN TO YOUR PATIENTS FOR A CHANGE...you might learn something.

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Replies to "Congratulations on your progress! Sometimes, the attitudes of these doctors can be pretty disappointing; the way..."

All that you say is true and I've experienced it all over the years. I am fortunate enough to have doctors who actually do listen, evidenced by the fact that they prescribed this medication off-label. After my success, I was stunned to hear him say that I was right all along. Normally, they skate around something like that. I really see it now that I'm down the road a little bit. When I first wake up, I still feel just as terrible as I have over the last decade...UNTIL right after I take the Sinemet and it all resolves within ten minutes. The contrast between how I feel on the med vs. without it is stark. It's no worse than it was, it's just easier to see and feel the contrast in real time now. I can't imagine how many other patients are going through the same experience as I was and I just want to get the word out there so that anyone suffering the same can try it out and see if that's also their issue. My doctor cited another patient who they'd diagnosed with ME/CFS (Myalgic Encephalomyilits/Chronic Fatigue Syndrome) fixing their condition with a similar drug. It frustrated me to hear that, thinking "why didn't you say something to me at the time you read that. My issue had also been called ME/CFS more than once. Anyway, that's all in the past now. I've got my life back!