← Return to Anyone have chronic lymphocytic leukemia (CLL)?

Discussion
Comment receiving replies
Profile picture for nancybev @nancybev

By the way, why did you start meds right away? That's unusual too, isn't it?

Jump to this post


Replies to "By the way, why did you start meds right away? That's unusual too, isn't it?"

Hi @nancybev,

My test results (below) from when I was first dx'd Feb-May'24 - it was several months before they were pretty confident of what it was. My Mayo doc classified it as stage 4. I had a few very small, but still enlarged lymph nodes in my armpits/neck, some lethargy, and a slightly swollen spleen. However, I never night sweats or other life-impacting symptoms. So, I had CLL in my spleen, lymph nodes, and (as determined from the biopsy) in my bone marrow.

Many people end up on watch & wait, sometimes for many yrs. Being ambitious, I didn't want to wait ;-). I can't say how unusual it is in the context of a disease that is itself pretty rare. For me, it was just caught at a physical, not because I noticed anything. I was, and am, otherwise healthy. Indeed, more susceptible to catching bugs however. I'm still trying to get comfortable with wearing masks in crowds.

IgG 431
IgM 2320
IgA 18
Platelets 99
Absolute Lymphocytes 45
WM-specific Factors
M Protein MK 1.33(May)
M Protein ML .318(May)
Kappa FLC 12
Leukocytes 47.5