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DiscussionAnyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: 22 hours ago | Replies (141)Comment receiving replies
Replies to "Hi @nancybev My kids were also concerned until I got us all up to speed. There..."
By the way, why did you start meds right away? That's unusual too, isn't it?
I take Brukinsa too. What side effects do you have, and how do you manage them? I bruise extremely easily, have dry skin, nails and eyes.
Also petechiae on my leg. I am lucky to not have any fatigue.
Thank you! I've been reading research papers, articles, etc. for about a week straight now, and with everything I read I just get more confused, for the most part. I think I know my labwork results by heart now...
@minnesotajim 's response about the bone marrow biopsy really has me wondering why my doctor (a) insisted that I have CLL Stage 0 and not low-count MBL, although pretty much everything I've read says that it's MBL, and that there is no need to do a bone marrow biopsy. She was warning me about things like having to go to a hospital if I get Covid, etc.
Her first assumption, before the test results, was that I had MDS, probably caused by too much alcohol (I drink more than I should, but not THAT much!). But, since apparently MBL is NOT caused by alcohol, maybe it threw her off.
I also have Celiac, which complicates things even more (I'm usually very careful about being GF).
I'm not really worried, but just getting tired of not really knowing what's going on, and doing so much reading on my own!
Thanks again for your reply. 🙂