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Ensifentrine - Trial for Non-cystic fibrosis Bronchiectasis patients
MAC & Bronchiectasis | Last Active: May 10 8:25am | Replies (20)Comment receiving replies
@wangling Don't worry about your response time! Road trip sounds more fun!
I feel conflicted about getting screened for the trial for the same reasons. If I have inflammation now, isn't it better to just get on an available drug proven to reduce inflammation right away? Confusing, honestly. 🤔
I'd be curious to hear what your ID doctor says and the logic behind one path vs. the other. I think the one and only downside of Brenso is the possibility of side effects but maybe they're not super common. Since I have a staph colonization, I feel like nipping inflammation in the bud is the priority.
Do you have frequent exacerbations? Have you been treated for MAC already? I know there are many factors that inform a treatment plan.
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I have staph colonization too. My ID doctor said, 40% people have it. Just
because it is every where. It is very common. We can leave it alone.
What the saying goes? A bird in the hand is better than two in the bush. I
think it is logical to take brensocabit. In the ideal world, we don't want
to take any medications, I, personally a strong believer in natural healing
all my life. I was lucky enough, did not have to take anything. But after
I got BE, I realized, anything helps me to have a quality life is worth to
try. Life is short. Really.
Generally speaking medications are all bad in some ways, but they also
save lives. Not everyone has the side effects, only certain people have
it. This is just what I think. Hope it helps.
Ling