Removing the bladder is not an option Im going to consider. Im only 43. I want to try all bladder preservation options first.

I was diagnosed in 2023. I had a large urothelial tumor in my left kidney and never a single symptom. Found by accident when checking something else. After a lot of a quick research and prayer I found the doctor I felt would take care of me. My kidney and ureter were removed. After having no tumors in my bladder a cystoscopy at 3 mths post surgery found two tumors in my bladder. One was near the site where my left ureter was removed. Every 3 months I had a CT and cystoscopy. Everytime a new tumor or two. Eleven mths after the kidney surgery I had a partial bladder removal to get rid of the troublesome spot but the tumors kept coming. My doctor too wanted me to keep my bladder as long as I could. I did 6 BCG and had tumors after. Then 6 doce/gem. No tumor in my bladder but with folowup CT I had a tumor on the outside of my bladder. Within a week I was in the hospital for surgery. I trusted my doctor and told him to do whatever would be best for me. I woke up with a RC and a Neo Bladder. That was 3 1/2 mths ago. I certainly will not say it has been easy but I do know it could have been much worse as well. My Neo Bladder is working fairly well, all things considered. I know that it can take mths to get it working really well. The worst thing now is fatigue. I don’t have the energy I used to have for sure but it is coming back. I am a 77 yr old very active female. My Doc understood this and picked what was best for me.