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Essential thrombocythemia: Interested in connecting with others
Blood Cancers & Disorders | Last Active: Sep 25 3:31pm | Replies (163)Comment receiving replies
I could use any links that you have also. It is hard finding I anything on ET. I was diagnosed with JAK2 positive with ET take a baby aspirin and count it 572 not really wanting to start Hydroxyurea but my dr is wanting me to, I am 48 and get pretty tired lately
Replies to "I could use any links that you have also. It is hard finding I anything on..."
Have they told you to take Iron and B12 . I take both and some days are better than others. My white cells are normal red cells are low but platelets are 297 I take 500 HU daily and have been on it since May of this year. This website has helped a lot lots of info here the Doctor I see is not a lot of help. I have some spots breaking out think they might be previous sun damage. My oily hair is dryer but no hair loss . So far I have had minor things happen that I think the HU might have caused but they soon leave so no major issues. Good Luck I am 71
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Try the HealthUnlocked site. It is out of the UK. Sorry, I don’t know how to paste a link here. Good discussions about MPNs. Like the Mayo platform you can follow discussion threads among patients for a number of diseases.