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Who has anhidrosis with treatment?
Talvey week 11
I quit sweating many weeks ago.
The Dr seems disinterested
All I've got so far is avoid things that make you sweat
It's a potentially dangerous side effect.
I've come very close to getting myself in trouble, several times.
Has anybody else had quitting sweating as part of their adverse side effects?
I haven't found any information about what to try, to alleviate the situation.
https://www.google.com/search?q=not+sweating.+talvey&oq=&gs_lcrp=EgZjaHJvbWUqCQgAECMYJxjqAjIJCAAQIxgnGOoCMgkIARAjGCcY6gIyCQgCECMYJxjqAjIJCAMQIxgnGOoCMgkIBBAjGCcY6gIyCQgFECMYJxjqAjIJCAYQIxgnGOoCMgkIBxAjGCcY6gIyCQgIECMYJxjqAjIJCAkQIxgnGOoCMgkIChAjGCcY6gIyCQgLECMYJxjqAjIJCAwQIxgnGOoCMgkIDRAjGCcY6gIyCQgOECMYJxjqAjIRCA8QABgDGEIYjwEYtAIY6gIyEQgQEAAYAxhCGI8BGLQCGOoCMhEIERAAGAMYQhiPARi0AhjqAjIRCBIQABgDGEIYjwEYtAIY6gIyEQgTEAAYAxhCGI8BGLQCGOoC0gEGLTFqMGo3qAIUsAIB8QV3aTO1EH4KJQ&client=ms-android-verizon-us-rvc3&sourceid=chrome-mobile&ie=UTF-8
https://my.clevelandclinic.org/health/diseases/15891-anhidrosis-lack-of-sweat
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I noticed that I sweat much less before my diagnosis. I can’t put my finger on when this started, but there was a time before my diagnosis that I had night sweats and sweat a lot. I think the no sweating has maybe been the last few years. I am taking HU for ET since March 2025, and my platelets have come down and I am sweating again! I have not seen this discussed on the message boards on MPNs, so very interested in your experience.
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2 ReactionsI haven't got anywhere. I'm not more informed now than when I made the post
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1 ReactionI found 7 others with anhidrosis.
There was 2 in the original study - not included in my 7.
There seems to be connections with neuropathy and/or hair loss associated with Talvey.
Hair loss with Talvey is not generally expected.
If you experienced hair loss with Talvey. Did you also experience reduced or lack of sweating?
I think a lot of people don't notice or don't put 2 and 2 together.