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Just Diagnosed with HCOM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 19, 2025 | Replies (37)

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I have been following several who are taking Camzyos but I have never been prescribed this medication. I am on Metropolol, Atorvastatin, and Lisinopril. After my alcohol septal ablation I still have chest pain and shortness of breath. Some days it's worse depending on my activity. However I now have Cardiac Amyloidosis (stiff heart syndrome) and I am experiencing ischemic strokes. I can feel the strokes which last anywhere from 30 seconds to 2 minutes. Some even affect my vision. I also now have a hole in the upper chambers of my heart in the septum. I had surgery to plug the hole but they could not get past the leads for my ICD. Now I have been placed on Eliquist (anticoagulant) to prevent blood clots. Also all 4 valves are regurgitating blood but not too bad so they are being monitored.
I'm dealing with the HOCM but this Cardiac Amyloidosis is no doubt going to be my maker. I had a brain MRI and I've had countless strokes which is causing short-term memory loss.

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Replies to "I have been following several who are taking Camzyos but I have never been prescribed this..."

Sending prayers that Eliquis helps you prevent further strokes. Sounds like you have a good team.