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Just Diagnosed with HCOM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 19, 2025 | Replies (37)

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Profile picture for kerryj2025 @kerryj2025

It has been a pretty busy past 3 weeks. I appreciate the information in your message 😊. I saw the cardiologist, my sleep apnea Dr, the ENT, pulmonologist and had a heart cath on Monday! My daughter, who had a brain tumor when she was 6 years old, has also had several appointments.. she’s a 33 year survivor which impresses many doctors. I’m her primary care giver. Finding a little extra time can be challenging sometimes. We seem to take turns having medical situations lol. Anyway, the results of the cath determined I need a septal myectomy (sp?) which is what Mayo had determined last April. I meet with the cardiac surgeon Oct 2nd. I have a dozen appointments between now and my cancer recheck at Mayo Nov 12. It’s like having a full time job but you don’t get paid… you pay to do it!!! Soooo, actually, I have 2 full time jobs LOL 😂. Fortunately, after my daughter was in a coma for 8 days in 2022, her dad has started to step up. He stepped up more after all my diagnoses this last spring.
So long story with a short answer… my kids hate it when I do that…. Hmmm. A little momma payback for the teenage years 😂. The heart surgery needs to happen, but it won’t be until they see if the cancer has spread or is behaving itself for now!

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Replies to "It has been a pretty busy past 3 weeks. I appreciate the information in your message..."

Good luck with all your appointments and upcoming surgery! You sound like a strong person who can overcome anything!! Keep posting! My preop testing is coming up and my myectomy and MV repair or replacement and single vessel
Bypass is oct 20th . Feeling optomistic! 🙏😇