Chronic Pain members - Welcome, please introduce yourself

I think you just have to advocate for yourself with the pain management docs. If there’s another group of pm docs you could try switching, but I suspect you will get a similar response. But you never know until you try.

There was only one group in my town. The closest alternative was 50 miles away. I can’t sit without pain and driving that far seemed irresponsible. I got to the point where I wanted my pain pump out. It took several visits over several months, but I just kept insisting. I’m sure they considered me a problem patient. It was easier for me. I had a concrete idea that I wanted carried out. Your problem doesn’t have an easy fix. But just keep insisting that something needs to be done in as nice and polite way as possible.
Of course this might be horrible advice, take it with a grain of salt. I still have very negative views of PM docs.

My name is Michael and I am from Mass. I am sad about my pain and the limits it has placed on me. Right now, I go to PT for my spine. I hope that makes me more mobile with less nerve pain. They are doing nerve flossing with me.

Hi there, I’m Cordelia

@weinham007 . It can be so maddening trying to get help for our severe pain. Did they ever give you a reason as to why your scs has not given you any relief. I'm assuming that your trial went well enough to justify the permanent implant. Unfortunately, I am hearing of more and more patients having a good trial but no relief from the implant. It is really baffling. I have a pain pump that has not given me any real relief...yet. Still having its output increased. Like the SCS, pain pumps seem to suffer the same problem...good trial but no relief from implant. I wish I could give you(and all those and myself) who have to endure this cursed pain from...who knows? Apparently no one.

Hi! I am Denise and have had chronic rectal spasms and pain for the last thirty-five years after a surgery. I have tried many several options to handle this to no avail. Any thoughts from anyone?

Yup, I've had 2 spinal fusion surgeries in my neck, C5-C6 and C7-T1, and 5 knee operations, with very little pain reduction. I also have spinal stenosis in my lower back, along with osteoarthritis in my back, knees, and hips. I haven't had a pain free day in the past 12-15 years, and had to quit my job and go on permanent disability in July of '15.

No answers as to why the SCS trial went so well and now I’m stuck with the permanent implant. Have an appointment to finally speak with the surgeon and dig deeper into this question. My appointment is in late October.
One would think that they would have gotten me in sooner. I guess the money making for appointments is to find new possible surgery patients! This was not inexpensive and is unexcusable!

Thank you for your answer. I appreciate your help.

I hear you loud and clear. I’d be like to believe that the medical community has out best interests at heart. Maybe they do. I ‘m not sure. Still searching for a doc that will truly be willing to look into my pain with a sincere heart. That doesn’t seem like too much to ask,
I hope you can get some answers to your problems.

Thank you.

Hi SusanEllen, I think the stages are to give us an idea of what we are in for. According to it the pain span does end. My journey has been as they predict started 2019 @wennerholme