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Prostate cancer that has spread to several lymph nodes and bones

Posted by longtravel @longtravel, Sep 16 5:37pm

I am wondering about the treatment for prostate cancer that has spread to several lymph nodes and bones. Just curious if they will start me on ADT and hormone treatment and then later do a chemo treatment
I’m trying to prepare myself

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longtravel | @longtravel | Sep 17 9:12am
In reply to @capatov "I saw a video with Dr Michael Steinberg of UCLA recently who said follow up SBRT..." + (show)
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I saw a video with Dr Michael Steinberg of UCLA recently who said follow up SBRT can be used now on up to 12 metastatic sites vs. 5-6. Might be worth checking out the latest on this technique?

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Thank you very much that’s very helpful I will definitely do my research

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ucla2025 | @ucla2025 | Sep 17 9:31am

We traveled three hours (one way) to get care at UCLA in Westwood. Well worth a couple of trips. That was in June. We are now under the care of an oncologist at UCLA Health satellite 20 minutes from us. You might want to see if there are any UCLA satellites closer to your home. Our doctors are fantastic.

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mjp0512 | @mjp0512 | Sep 17 9:52am
In reply to @longtravel "Thank you for the reply I am stuck with local oncologist I haven’t seen him yet..." + (show)
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Thank you for the reply I am stuck with local oncologist I haven’t seen him yet due to my insurance I’m on an HMO and they only contract through three oncologist here in town hopefully I can talk them into referring me to USC in Los Angeles I’m only two hours away

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You don't need an oncologist to start ADT to slow this crap down. Urology can make that happen. I didn't see oncology until after I was on ADT for a month and a half. In that time, my PSA dropped over 98%. Immediate ADT for newly diagnosed mCSPC is NCCN, NCI, and NIH standard of care. Even an HMO can't argue with that. (unless, of course, you have an underlying condition that prohibits it)

And... what the H.E.L.L. would we do without all these acronyms. 🤣

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jeff Marchi | @jeffmarc | Sep 17 10:30am

I said I would include more information and for some reason I never did add this link.
https://connect.mayoclinic.org/discussion/considerations-about-a-doublet-versus-triplet-therapy/

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jeff Marchi | @jeffmarc | Sep 17 10:54am

You definitely should not be waiting for treatment. You have a very serious prostate cancer case and it can get much worse if you don’t get treatment soon.

Even getting on ADT would be a major Helping stopping your cancer from spread spreading and growing. If it’s in your bones and continues it can get into your bone marrow and cause serious problems.

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longtravel | @longtravel | Sep 17 11:23am
In reply to @jeffmarc "You definitely should not be waiting for treatment. You have a very serious prostate cancer case..." + (show)
Profile picture for jeff Marchi @jeffmarc

You definitely should not be waiting for treatment. You have a very serious prostate cancer case and it can get much worse if you don’t get treatment soon.

Even getting on ADT would be a major Helping stopping your cancer from spread spreading and growing. If it’s in your bones and continues it can get into your bone marrow and cause serious problems.

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I have an appointment with my oncologist which I don’t even know who that is next Wednesday a week from the day at 12:30 PM. By the time I could get a appointment or even get close to seeing my urologist it would be beyond that I believe so next Wednesday I’m gonna basically insist on somebody started me on ADT they have a trial it’s 4228–210 it’s the same thing as Firmagon. But it’s a dosage trial but if I start that trial from the urologist I can’t add anything to it whatsoever for three months because it would mess up the trial and the dosage so hopefully oncologist. will start me next week after my visit again thank you very much for your help

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asolidrock | @asolidrock | Sep 17 11:23am
In reply to @marcandersun "Probably a triplet therapy of ADT, chemo, and one medication like abiraterone, enzalutimide, darolutamide, etc. Maybe..." + (show)
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Probably a triplet therapy of ADT, chemo, and one medication like abiraterone, enzalutimide, darolutamide, etc.
Maybe even a radiogland like Lutitiem 177. Were your mets found via PSMA pet scan? That would find much more than conventional imaging ct/bone scans.

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Yes they were

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asolidrock | @asolidrock | Oct 1 3:32pm

Are you seeing a urologist or oncologist?

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