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Profile picture for nancybev @nancybev

Thanks for responding. My options are somewhat limited for oncologists in my area, but my doctor seems to have an excellent reputation and is very thorough.

From what I can tell, a few things might be prompting her to do the biopsy--the petechiae and weird rashes I've been getting since around the time I initially got bloodwork done, as well as anemia which has since resolved, and some bone joint pain, which hasn't been bad lately but was excruciating a few months ago (a big part of the reason I went to my GP in the first place). Perhaps she wants to rule out other infections or abnormalities?

The skin stuff in particular has just been weirding me out. I do have an appt. with a dermatologist (as my doctor recommended) next week. I do worry about something like leukemia cutis or something, but I'm still just trying to work through everything. If the biopsy will help to clarify anything, I have no problem having one.

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Replies to "Thanks for responding. My options are somewhat limited for oncologists in my area, but my doctor..."

Hi @nancybev

My kids were also concerned until I got us all up to speed. There is a ton of information to learn, but fortunately so many great & reliable resources available.

I was dx'd May'24 @ 64. I went on drugs (Zanubrutinib) immediately. Both Mayo and UMN Med Center did biopsies, FISH, along with too many other tests to keep track of. As you have learned, or will hopefully soon learn, for most people it's something to live with... though unfortunately some people are impacted to a much greater degree.

There is a lot of support right here & out there for CLL and its variants. Staying healthy is a great idea, so kudoos for that! Happy to answer any questions if you have them.