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Profile picture for minnesotajim @minnesotajim

Bone marrow biopsies are pretty rare these days; FISH test and other blood work gives sufficient information for a treatment plan, which is often simply watching for disease progression. Hopefully you are getting competent medical advice. If it's available to you, make an appointment with a CLL expert. Check out the CLL Society website, where many are listed.

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Replies to "Bone marrow biopsies are pretty rare these days; FISH test and other blood work gives sufficient..."

Thanks for responding. My options are somewhat limited for oncologists in my area, but my doctor seems to have an excellent reputation and is very thorough.

From what I can tell, a few things might be prompting her to do the biopsy--the petechiae and weird rashes I've been getting since around the time I initially got bloodwork done, as well as anemia which has since resolved, and some bone joint pain, which hasn't been bad lately but was excruciating a few months ago (a big part of the reason I went to my GP in the first place). Perhaps she wants to rule out other infections or abnormalities?

The skin stuff in particular has just been weirding me out. I do have an appt. with a dermatologist (as my doctor recommended) next week. I do worry about something like leukemia cutis or something, but I'm still just trying to work through everything. If the biopsy will help to clarify anything, I have no problem having one.