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Reducing Pednisone

Polymyalgia Rheumatica (PMR) | Last Active: Oct 8 8:58am | Replies (21)

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Hello @pmr52025, I would like to add my welcome to Connect along with @beauty44, @st1300 and others. I think anyone that is struggling to taper off of prednisone might find the following discussion helpful.
-- Hello How to Slowly and Safely Taper Off Prednisone but ... no set rules.
https://connect.mayoclinic.org/discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules/
For both my occurrences of PMR I kept a daily journal of my level of pain when I woke up in the morning and my dose of prednisone for that day. It was recommended by my rheumatologist. When it was time to taper to the next lower level, I either went up half of my previous taper down or went to the next lower dose in my tapering schedule depending on my pain scale being less than 2 which was my acceptable level of pain that I could easily deal with.

There is an upcoming webinar that you might find helpful - Polymyalgia Rheumatica: Closing Gaps in Diagnosis and Disease Monitoring tomorrow, Thursday, September 18 at 6:30 PM Eastern.
Topics covered:
- How PMR is diagnosed and tracked
- Why some patients are misclassified or overlooked
- The role of patient experiences and reported symptoms in care
- Gaps in today’s practices and what can be done to close them

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Replies to "Hello @pmr52025, I would like to add my welcome to Connect along with @beauty44, @st1300 and..."

Thank you. This is very helpful and I will watch the webcast.

@johnbishop thanks for info. I just watched. Wish o had signed up so I could get on their email list, etc!!