My leg pain/burning drove me to press doctors for pain management that led to my fibro diagnosis about 10 years ago. For my entire life, I was able to deal with pain everywhere, until leg/foot issues started. Pain and Burning at night prevents sleep. No sleep increases pain level. I tried every recommended fibro drug. Side effects of mind altering drugs exceeded any benefits for me. Recently, My leg burning/pain increased significantly following 30 rounds of radiation to groin lymph nodes and chemo nerve damage in toes. I am struggling with increased leg pain. Pain increases exponentially if I stand for more than 15 minutes, and sleeping through pain is an issue.

In the past, acupuncture helped leg pain management. I also had success with turmeric when swollen lymph nodes caused pain increase in 2020. I will avoid turmeric for at least 6 months post treatment, as some literature indicates that it may reduce chemotherapy efficacy.

Sadly, only opioids give me temporary minor relief for leg issues. I take a very small dose periodically to tamp down pain level when it gets extreme. There are studies on Federal NIH website supporting opioid effectiveness for fibromyalgia restless leg syndrome pain management. I use 5 mg codeine with Tylenol.

I plan to research other supplements and medications for pain management after my 6 month cancer treatment anniversary. Sanjay Gupta’s new book on pain talks about fairly new non opioid sodium channel blockers that reduce pain by blocking a pain signaling pathway in the peripheral nervous system b4 pain signal reaches brain. This year the FDA approved the 1st drug of this nature, Jounavx.