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Newly diagnosed with AML (FTL3 TKD)
Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (56)Comment receiving replies
Hey @loribmt nice to hear from you! yes it’s from the Neupogen shot to increase the WBC count. I’ve had the shots before with 0 neutrophils and there is some lower back pain but I guess having undergone the bmt it’s just way more painful. I just had my 2nd shot today so fingers crossed it settles down.
Honestly feeling so grateful to have this opportunity that it makes it all worth it!
Replies to "Hey @loribmt nice to hear from you! yes it’s from the Neupogen shot to increase the..."
Hi @jamielynn777 I didn’t want to let another day go by without checking on you. You’re nearing the all important 100 day point post transplant. I hope all is going well for you. By now you should be feeling a little less fatigued and much stronger. Are you able to convalesce at home or are you still in a clinical setting?
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Jamie, that back pain from the Neupogen was the worst pain I endured through that entire AML/BMT journey. I know you’re not in the US but do you know if your doctor can prescribe you an antihistamine called Claritin? The generic name loratadine.
When taken once daily for about a week or so after the Neupogen shots it diminishes the pain! But either way, that pain should subside in a few days.
I’m so glad you’re doing well and that you were able to finally get this transplant! Keep me posted, ok? Sending you an air hug! 🥰