Upcoming PMR Webinar at 6:30 eastern on Thursday 9-18

Posted by jeff97 @jeff97, Sep 14 11:14am

I saw this posted on another support group. You have to register (free) for the event.

Here's the description:

"Unpacking Polymyalgia Rheumatica: Expert and Patient Insights
In this special episode of The Health Advocates, we take a closer look at Polymyalgia Rheumatica (PMR), a condition that affects tens of thousands of older adults each year in the U.S. but is often misunderstood. Host Steven Newmark is joined by GHLF’s Angela Degrassi, patient advocate Eileen Salsman, and two leading experts — Dr. Leonard Calabrese and Dr. Jeffrey Curtis — to unpack what PMR is, how it impacts daily life, and why a patient-centered approach to research and care is so important. Together, they explore symptoms, diagnosis, steroid treatment challenges, and emerging insights from new research and lived experience.

Special note: We invite you to a live webinar on Polymyalgia Rheumatica (PMR) that will explore critical gaps in diagnosis and disease monitoring.

Date and time: Thursday, September 18th at 6:30 PM Eastern"

Here's a link to the description and registration link. You have to scroll down a little.
https://ghlf.org/the-health-advocates/

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

jeff97 | @jeff97 | Sep 15 4:00pm

In reply to @mlz "I tried to register but the link took me to a different webinar on the same..." + (show)

I looked closer at the link I sent. The description is of a podcast that you can listen to. I just listened to it, and it's good. It's 17 minutes long. At the end they talk about the upcoming webinar. They say it will be over YouTube, and that if you log in to YouTube you can interact with the panel.

I also recently received an email confirming my registration. So that might be a different way of joining the webinar besides going through YouTube.

pbhorton | @pbhorton | Sep 15 7:06pm

Thank you so much!! I signed up also.

John, Volunteer Mentor | @johnbishop | Sep 15 7:08pm

Here’s the link I was sent. It takes you to the YouTube link for the webinar and you can subscribe to their channel - https://youtu.be/j9kRz0aPVSc?si=I5XYmm6hEx494Rtp

mlz | @mlz | Sep 15 9:19pm

In reply to @jeff97 "I looked closer at the link I sent. The description is of a podcast that you..." + (show)

Thanks, Jeff 97.
I looked again at the webinar and although the title is different, the expanded description is congruent with providing patient perspectives.

jabrown0407 | @jabrown0407 | Sep 16 6:19am

In reply to @johnbishop "I registered but did not receive a followup email with a link to attend the meeting...." + (show)

Check your Spam folder - it might have been filtered out.

John, Volunteer Mentor | @johnbishop | Sep 16 7:13am

In reply to @jabrown0407 "Check your Spam folder - it might have been filtered out." + (show)

I did receive it yesterday and posted a link above - https://connect.mayoclinic.org/comment/1394098/. I think anyone can click on the link without having to register and view the live webinar on YouTube.