Chronic Pain members - Welcome, please introduce yourself

I don't know if I've introduced myself or not . My name is Kerry , and I am mainly here for my 29 year old daughter Priscilla , who has been diagnosed with Ehlers-Danlos Syndrome , and has chronic pain throughout her body ,
mainly hands , neck and feet . The only thing that ever helped a combination of ketamine and morphine in the ER . We tried ketamine afterwards , and it didn't help . Now we are investigating methadone injections . Has anyone tried this for chronic pain , and what were the results ? Thank you .

I’m 73 and remember having back pain since I was ten. It’s affected me my entire life. My last flare lasted five years, five long years.
What has helped? Certainly, learning that Australians and those in Scotland had been examining the efficacy of various treatments used in the US for twenty-five years. They have developed different tools. People are managing differently there. We need to update our approaches.
I have used physiatrists, injections, medications, chiropractors, acupuncturists, physical therapists, occupational therapists, osteopathy and worked on the “emotional basis for my pain”.
What happened that one day I woke up and could walk without pain? I don’t know.

Has anyone gotten real pain relief from a “pain” doctor? Seems to me, they love to shoot people up with drugs that may or may not work. Then bill Medicare for the max amount.

I have stage 3 of Periphial Neuropathy, The oh!!! so painful part. I have had every test under the sun and still there has been no answer to what has caused this. Specialist that have run the tests have been a Nuerologist, who then sent me to Synapse Nuerology who sent me to a Haemotologist. He has not sent me on, just no results from him. What do I do now, one needs to know what is causing such a life style as I am in now, wenner

That seems to be the reality. I have a pain doc(anesthesiologist)who manages my pain pump. I have never gotten any pain relief to date. So, how does he actually "manage" my pain"? Beats me. After more than two years, I am in more pain than when I first saw hi. No amount of asking, begging, pleading seems to make any difference. He lacks any empathy and usually brushes me off as quickly as possible.

I have Adhesive Arachnoiditis and have been on Methadone for about ten years. It is very effective in easing my pain.

A lot of us here don't know the cause of our neuropathy either, so they call it "idiopathic", which means they have no answers for us, other than just deal with it. Even if a cause can be determined, once the nerves have been damaged, there's no treatment or cure, we're stuck with it for the rest of our lives.
My lifestyle has taken a 180 degree turn for the worse, and it's been 10 years of dealing with this crap now. I've seen 4 neurologists and had every test available done, sometimes on multiple occasions, and the results are always the same, no underlying cause can be found.
Sometimes we're just screwed by life.

We just have to push on, keep smiling. We look and act "normal " so we are not really believed if we tell them neuropathy. At the moment I have a GP helping me with pain control I will keep you posted @wenner

Just saying hi, new member here. I have been a chronic pain patient for over 20 years, have had 5 spinal surgeries and left with "failed back syndrome", with broken hardware and ongoing pain issues. I have been lucky to have good pain management, was on generic MS Contin for many years until recently when there has been a supply shortage, apparently nation-wide. I was just changed to Xtampza. So far it's working OK but I dislike how you have to take with a fatty meal or food for it to work properly. Kind of inconvenient. Hoping the ER morphine shortage isn't too long. Hope everyone having a good day.

I'm here to learn from you guys. I have idiopathic neuropathy, and I'm in the pain stage of it. My GP now is trying to control my pain, and I'm here seeing what you say about it @wen