Is foot/toe pain a symptom of increasing platelets in ET?

I know this is a frustrating comment, given that it's the weekend, but still: Please check with your doctor. That's the only way to know what is OK for your individual situation.

As noted in another post it may be gout. When I was on HU I was also put on gout meds (I do have a bit of previous history). When I moved to Jakafi I quit the gout meds.
Double check with your doc on this.

Are you still on HU . Just wanted to know if HU stops after platelets are normal or HU continues life long

Besides you even if any one can share their experience on this

ET is a chronic cancer, no total cure, just abate symptoms. Platelets are kept within normal range with HU. But HU never stops, because the mutation continues to develop excess platelets if HU discontinued and then the risk of
stroke or heart attack increases again. If you want to know more about Bone Pain and MPN (ET is one of many forms of MPN) here is a good information sourcc https://www.mympnteam.com/resources/pain-and-mpns-causes-and-management

Hello. I have the same difficulty. Joint pain from my neck to my toes. I’ve been taking 15 mg of Meloxicam daily for at least 30 years. After trying every NSAID, OTC and Rx it was the only one that gave me relief. Curiously, I’ve stopped taking it thinking it wasn’t doing much to help and within a day or two I feel a lot more pain, especially in my hips and shoulders.
I’ve been on HU for about 4 years since being diagnosed with PV (and gout). My hematologist and pharmacist both know Im taking the meloxicam and neither has cautioned me about taking them both. And, like you, I need that Meloxicam! I also take a low dose aspirin daily.
The PV and gout were discovered after I complained of more severe pain (than usual) in my knee and before that my toes had been painful. Allopurinol takes care of that.
The chronic joint pain is not significantly worse since dx of PV. What is worse is neuropathy in feet and up to mid calf and pain in calves. Ultrasound was OK. I also have real trouble straightening up and walking and I somehow think it’s the PV (someone else posted about the bent over problem).
I had been taking a Tramadol every now and then for pain but stretching exercises help a lot and I haven’t had an tramadol for months.
I think if you trust your doctor/s and they are aware of what you’re taking, supplements also, you're OK.

I would encourage anybody with joint, bone, tooth, or toe pain to mention to doc.

MPNs are rare and poorly understood cancers. The inflammatory nature of these diseases makes some of us more prone to gout and other conditions.

But most medical textbooks still push the old line that ET is a symptomless blood disorder. It is for some here. For others it's not.

Clinical oncologists don't see enough of us to really get a handle on why some of us react badly to HU and some feel better, or why some people have big symptom burdens and others don't.

And ET patients, because they've been told they have no symptoms and are never asked about them, tend not to talk about them and maybe even think they're just hypochondriacs. The discomfort is real. Speaking up will prod docs to understand it better.

Thanks for your input. The bone pain, toe/foot pain isn’t in my head, but does go unaddressed when I mention it to my Oncologist. Occasional gout, headaches, and lately earaches also go unaddressed. That’s why I’m pushing for a dose reduction. HU has reduced my platelets, but the side affects are often intolerable. Did I mention hair thinning, weight gain, depression and off balance. These are symptoms I deal with every day.

My platelets are in the normal range, but to keep them there, I am told that I must continue HU for life! I'm pushing for the minimum dose, but presently on 5 days (500mg capsules) weekly. So many side effects! I'm hoping to be able to get a dose reduction!