After BMT how much help did you need at home?

Hi @treehouse5437 There can be a number of issues regarding home care after a BMT. Each of us have our own experiences and will have varying degrees of ‘normalcy’ by the time we’re released to actually go home.
Not trying to be vague but usually by the time we go home around or just beyond the first 100 days post transplant, most of us are feeling well enough to manage…though fatigue can be a friend for several months.
By the end of the first 100 days usually there’s a steady uptake in stamina, nausea is gone. But it is still recommended to have someone to help out with driving to doctor’s appts, grocery shopping, cleaning, no changing cat litter, etc. There is an extensive recovery period post allogenic transplant.

I was excited to go home at the end of almost 4 months. But wow, getting into the car and driving first time was a shock. My legs were weak. So baby steps with all you do initially.

Are you having an allogeneic transplant using donor cells or an auto transplant using your own cells? Recovery from auto is generally much faster. Also, what is your protocol for transplant? Are you in-patient for a month and then released to go to your home or an off sight recovery center? Do you stay near your transplant center for 100 days?
Do you live alone?

Treehouse, hi! I had an auto BMT in 2019. The clean out chemo wasn’t fun. And the Melphalan (sp) was horrendous. Other people that I spoke to , tell me they weren’t given that. If you can ask them to substitute something else—you would be better off!
I stayed with my son afterwards. I didn’t drive or leave the house for 3 months. Then I went back to work and got Covid. My numbers after the transplant were great. But after COVID, they started climbing again! So I had to go back on treatments. Not the result I was expecting. Anyway, as long as you have someone driving and shopping for you, staying home was a breeze. Just sleep when you’re tired and don’t go out too early and risk picking up anything, like a cold, because your immune system is nonexistent. ONE DAY AT A TIME. I didn’t have to stay near the transplant center afterwards. I was about 10 miles from it.
After the Car T I had to stay in a hotel nearby for about 2 weeks, while I was being monitored.
By now, you should be done. I pray you made it through with flying colors, whatever that means! Hahaha. Looking forward to seeing a recovery post, if it’s not on here already! I just joined a couple days ago.